Anyone know someone with Cystic Fibrosis

[Ebony]

Hi there. I have a son who will be 18 after xmas this year.
James has Cystic Fibrosis and Hamophillia B.
Do any of you have teenagers or young adults with life threatening conditions, who have to attend the hospital regularly ?.
This a just an enquiry for advice because my son has refused to attend the hospital for the past 10 months.
I am quite happy for somone to pm me if they do not want to post on the forum.

:wave:

[ali and boyz]

Hi there. I have a son who will be 18 after xmas this year.
James has Cystic Fibrosis and Hamophillia B.
Do any of you have teenagers or young adults with life threatening conditions, who have to attend the hospital regularly ?.
This a just an enquiry for advice because my son has refused to attend the hospital for the past 10 months.
I am quite happy for somone to pm me if they do not want to post on the forum.

:wave:

Hi Jan I have pm'd you

[karrie]

hi jan i have also pm'ed you

[Sarah84]

Hi Jan

I have CF and like your son went through a stage of not wanting to attend hospital check ups when i was about 18/19 though not for as long as 10 months, its not that i didnt want to keep well or anything i was just sick of the sight of the place to be honest, even now i only have appontments every 3 to 4 months for most of the time.
If you have any questions or want soem advice feel free to PM me anytime

Sarah

[cfkid]

Hi my name is david and I have cystic fibrosis and I also run the cystic fibrosis pen pal club and support group for my friends and there families and teachers as well... If you would like to check out my really neat site here is the site address its the site as over 500 members. I also run the cystic fibrosis pen pal club and support group hotline for everyone to call to talk with me as well call anytime im open 24 hrs a day 7 days a week . I have cystic fibrosis as well as other major medical condions , i have a feeding tube called a (button) ive had that for a bout 5 yr now it works well for night time feeding.. I also have a double port left upper side that way they can have one line for blood and one for meds . I hope that you are having a wonderful day and a good week talk to you all very soon

david