I guess we're grown ups now? Nah, maybe next week! October 2016 Part 2
Hello and welcome to the second part our Honeymoon Trip Report Bonanza!
Part 1 was a week in Las Vegas. Those shenanigans can be found here. Let me introduce you to your cast. First up is me, Alix, 28 (eugh) Disney and Harry obsessed. Chief planner, shopper and photographer. Ross, my new(ish by the time I'm writing this!) husband! 27. Food obsessed. Chief eater and beer drinker. It is also his personal mission to eat chicken wings at every available opportunity so we will be keeping count of how many he gets through with a daily 'Wing Count'. He left Vegas on a wing count of 37 so lets see how he does in Florida. Best day ever! A few unofficial cast members who will be mentioned throughout... Oliver, now 7. Star Wars OBSESSED! Like, seriously very very very mad on Star Wars! Ariana, 4. Loves Tinkerbell, Princesses, LOL Surprise Dolls, watching crap on You Tube and anything pink and glittery. Jack, 10 weeks old right now! Wont be mentioned in the trip report cause he didn't exist but thought I'd give him a mention cause he's hella cute. We like a good comic-con in this house! Oliver, dressed as Captain Fazma, with Pam Rose from Star Wars: A New Hope Ariana, make way! Make way! Jack of house Gryffindor We got married on 1st October and flew to Vegas on 4th for a fun packed week which is part one, then we flew to Orlando on the 11th for another two weeks. It's taken me forever to type this up, mainly due to computer issues but partly because the day after we returned we got hit with the news that Oliver had been diagnosed with Muscular Dystrophy while we were in Florida and we were then told it was Duchenne MD. So trip reports and the likes were put on the back burner while we dealt with that and came to terms with it. You can read more about Duchenne and how it will effect Oliver here- https://www.actionduchenne.org/Pages...at-is-duchenne But now I'm finally getting around to typing up all of our wonderful memories, it's helping me to get excited about our upcoming trip this October thanks to Starlight Children's Foundation. Enjoy! Pre Trip Our wedding day :inlove: Travel Day - Orlando Bound Day 1 - Suit Up, Hooter! Day 2 - Charley Loves Walmart Day 3 - Seafood and Eat It Day 4 - Diagonally Day 5 - Run Alix Run! Day 6 - Life's a Beach (Club) Day 7 - Scary Poppins gets married Day 8 - Fairways Felix Jr |
Day 2 is up
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I remember you getting the diagnosis while on your honeymoon. Such a horrible disease, I hope things have become a bit easier for you now. It is amazing what becomes routine in time. My father had an x-linked genetic disease as well. Hopefully like with his Fabry's disease there are better treatments available soon. I hope your whole family enjoys the Starlight trip. It must be helpful having something so lovely to look forward to. I look forward to reading the rest of your trip report.
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I’m just going to start reading your trippie but wanted to send big hugs your way. I understand the impact of a diagnosis like this. My cousin has duchenne too. He’s 13 now.
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He's part of a clinical trial for a new treatment and although it's not a cure it's certainly helping him for the time being. And there's new research happening all the time so although I'm not getting my hopes to high for a cure in Oliver's lifetime, there is a bit of hope and that's good enough for me! Thanks for reading! :) Quote:
Thank you for reading :) |
Day 3 is up :)
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Great report. Loved your Vegas bits and now looking forward to the rest of your Orlando time :)
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Day 4 is up! |
Day 5 is up xx
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Day 6 done xx
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