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Search: Posts Made By: Rea
Forum: General Chat 20 Aug 23, 12:34 PM
Replies: 5
Views: 1,426
Posted By Rea
Stiff person syndrome - RARE DISEASE 1 in a million - anyone else?

Hi :wave: 🦓

I'm wondering if there are any other dibbers with SPS (stiff person syndrome) 🦓 and if they have heard of or are interested in joining a self help group alongside other rare disease...
Forum: General Chat 20 Aug 23, 11:42 AM
Replies: 2
Views: 761
Posted By Rea
Unfortunately I can't sign up but I would urge...

Unfortunately I can't sign up but I would urge anyone who can and are able, to do so.

Stem cell transplants are a very challenging, illness aside.

It is something we have considered for my...
Forum: General Chat 20 Aug 23, 09:14 AM
Replies: 15
Views: 1,227
Posted By Rea
Parky as he was known locally was held up to us...

Parky as he was known locally was held up to us as a shining beacon in my school days. Half the staff at my school had either taught him or been at school with him (or so they claimed) but that...
Forum: General Chat 20 Aug 23, 09:06 AM
Replies: 21
Views: 1,749
Posted By Rea
The first one I listen to is one set up by 2...

The first one I listen to is one set up by 2 friends of mine. It's called SPS unscripted. It has a target audience but it is listened to worldwide. It discusses the issues of living with a one in...
Forum: Walt Disney World and Florida Trip Reports 19 Aug 23, 05:18 PM
Replies: 0
Views: 359
Posted By Rea
To Dream the Impossible Dream... part one

Our trip to Orlando had been a long time in the making. Our original plan was a couple of nights at Anna Maria Island, followed by just over 2 weeks in a villa at Windsor Hills Resort.

We've been...
Forum: Tickets 11 Apr 23, 06:03 PM
Replies: 2
Views: 536
Posted By Rea
Thank you. Appreciate the advice.

Thank you. Appreciate the advice.
Forum: Tickets 11 Apr 23, 01:13 PM
Replies: 2
Views: 536
Posted By Rea
Universal Price on the gate

Hi :wave:I'm wondering if anyone can tell me how much it will cost for a Universal Ticket for both parks on the gate?

My husband has a health condition that makes it difficult to arrange to visit...
Forum: Trip Planning Florida 12 May 22, 10:03 AM
Replies: 6
Views: 692
Posted By Rea
:cool2:Thanks. Might have to look in earnest at...

:cool2:Thanks. Might have to look in earnest at March.
Forum: Trip Planning Florida 12 May 22, 08:58 AM
Replies: 6
Views: 692
Posted By Rea
Florida Cooler Months

Hi We've been to Florida many times between September and December. We found September to be very hot but November and December were quite pleasant during the day and a little cooler in the...
Forum: Additional Support Needs & DAS 6 May 22, 02:01 PM
Replies: 4
Views: 2,044
Posted By Rea
Hi Thanks for the information. It's much...

Hi Thanks for the information. It's much appreciated :)
Forum: Additional Support Needs & DAS 6 May 22, 08:06 AM
Replies: 4
Views: 2,044
Posted By Rea
Airline Choice and Special Needs

Hi I know for everyone, choosing airlines is a personal choice but I'm hoping for some help. Whilst we've flown quite a lot to Orlando, we haven't been for several years now.

Many of the trips we...
Forum: General Chat 29 Nov 19, 08:03 AM
Replies: 89
Views: 17,428
Posted By Rea
Congratulations. I hope Poppy continues to rest...

Congratulations. I hope Poppy continues to rest and gets stronger day by day... Ironically my niece was born on the 21st November. She was due on the 5th February and weighed 2lbs when she was...
Forum: General Chat 22 Nov 19, 08:50 AM
Replies: 65
Views: 6,399
Posted By Rea
I think it's ingrained in me, even now they're...

I think it's ingrained in me, even now they're adults. In my defence, we had many middle of the night dashes to hospital as both my children are asthmatics. My son used to have to wear a monitor...
Forum: General Trip Planning 11 Nov 19, 09:22 AM
Replies: 11
Views: 802
Posted By Rea
Don't know if you're thinking of eating whilst...

Don't know if you're thinking of eating whilst there but thought I'd point out that in the nearby village of Baslow, which is walkable to Chatsworth as the grounds run behind it, there is a lovely...
Forum: General Chat 27 Oct 19, 07:55 AM
Replies: 694
Views: 122,543
Posted By Rea
Pleased your son is making progress x

Pleased your son is making progress x
Forum: General Chat 19 Oct 19, 10:10 AM
Replies: 13
Views: 1,488
Posted By Rea
I had to stop taking it because of the cough. I...

I had to stop taking it because of the cough. I am asthmatic and also have a hernia so the Dr told me to stop taking it. I'm sure the constant coughing and choking sent the BP up a few notches...
Forum: Disney Cruise Line and Other Cruise Planning 4 May 19, 03:21 PM
Replies: 84
Views: 9,373
Posted By Rea
Also you could check out the FB Azura group. ...

Also you could check out the FB Azura group. Lots of helpful tips on there.
Forum: Disney Cruise Line and Other Cruise Planning 4 May 19, 03:20 PM
Replies: 84
Views: 9,373
Posted By Rea
You'll have a fabulous time. So much to see and...

You'll have a fabulous time. So much to see and do on the Azura.

Look out for the solo travellers get togethers in the daily magazine.

We are booked on the Azura for next year up to now but...
Forum: Disney Cruise Line and Other Cruise Planning 3 May 19, 11:20 AM
Replies: 84
Views: 9,373
Posted By Rea
I haven't been to the Fjords but I have sailed on...

I haven't been to the Fjords but I have sailed on several of the P&O's fleet and many years ago on a Thomson one. The staff on the ships are wonderful. That's not an exaggeration. They really do...
Forum: General Chat 14 Mar 19, 09:42 AM
Replies: 151
Views: 9,629
Posted By Rea
First of all wishing your hubby a speedy recovery...

First of all wishing your hubby a speedy recovery and hope all the family cope well. It is a very stressful time for all the family.

On a similar vein, my husband had a heart attack 2 days after...
Forum: Theme Parks Florida 14 Mar 19, 09:09 AM
Replies: 4
Views: 314
Posted By Rea
It does get busy as it's a popular time for the...

It does get busy as it's a popular time for the US residents. It tends to be busy a few days either side of Thanksgiving. We've been there a couple of times for Thanksgiving and whilst it's busy,...
Forum: General Chat 26 Feb 19, 09:49 AM
Replies: 24
Views: 2,060
Posted By Rea
Hope you have a lovely trip together :)

Hope you have a lovely trip together :)
Forum: General Trip Planning 28 Oct 18, 09:08 AM
Replies: 10
Views: 1,306
Posted By Rea
Rutland Hotel is not far from the Hallamshire...

Rutland Hotel is not far from the Hallamshire Hospital which you're practically at the side of, on Claremont Crescent. However, there aren't as many places to eat here. There's plenty of takeaway...
Forum: General Chat 18 Sep 18, 10:06 AM
Replies: 41
Views: 3,606
Posted By Rea
Hi Amy I completely understand where you are...

Hi Amy

I completely understand where you are coming from.

You do need to be in the right place to go away and be able to relax.

Pancreatitis (never mind dealing with cancer) is a very...
Forum: TV and Film 11 Sep 18, 03:30 PM
Replies: 7
Views: 1,042
Posted By Rea
This sounds great. I'd love to go having seen...

This sounds great. I'd love to go having seen quite a few of the stars on holiday this year. We were lucky enough to go on a cruise with Gorka, Gemma Atkinson, AJ, Chloe, Diane and her partner Pete...
Forum: General Chat 10 Sep 18, 08:58 AM
Replies: 23
Views: 2,854
Posted By Rea
Hope it improves soon and you are fit and well...

Hope it improves soon and you are fit and well for your holiday. I have a long term problem with my back and have debris floating which pushes on the nerves so I completely understand how you're...
Forum: General Chat 10 Sep 18, 08:51 AM
Replies: 9
Views: 675
Posted By Rea
Have a great time. I love Epcot Food and Wine...

Have a great time. I love Epcot Food and Wine Festival :)
Forum: General Chat 10 Sep 18, 08:48 AM
Replies: 16
Views: 1,186
Posted By Rea
I know what you mean about matching the seasons. ...

I know what you mean about matching the seasons. In Summer I like to use White Company Seychelles but once the nights get cooler I like to move onto other brands.
Forum: General Chat 10 Sep 18, 08:43 AM
Replies: 128
Views: 5,746
Posted By Rea
Sorry for your loss x

Sorry for your loss x
Forum: General Trip Planning 7 Sep 18, 09:42 AM
Replies: 4
Views: 641
Posted By Rea
I can't recommend places to stay unfortunately...

I can't recommend places to stay unfortunately but I would say if you get the chance watch the sunset over Oia (pronounced eeya). It really is beautiful. Mykonos must have been the cleanest place...
Forum: General Chat 13 Jul 18, 09:04 AM
Replies: 9
Views: 856
Posted By Rea
Your GP should be able to refer you to an...

Your GP should be able to refer you to an ophthalmologist and they can unblock the tear ducts. It's not for the faint hearted in that it's not the most pleasant procedure but it really does help. ...
Forum: General Trip Planning 8 Apr 18, 08:07 AM
Replies: 5
Views: 842
Posted By Rea
We flew into this airport when we stayed at Sani,...

We flew into this airport when we stayed at Sani, a beautiful resort in Halkidiki. We loved it. We were 2 adults and 3 children. The resort was especially good for children.
Forum: General Trip Planning 14 Mar 18, 08:21 AM
Replies: 8
Views: 981
Posted By Rea
It's a few years since I caught a connecting...

It's a few years since I caught a connecting flight in Frankfurt but I know it was a very close call. We struggled to get to the gates on time (although we do have mobility problems). I think I...
Forum: General Chat 7 Feb 18, 07:59 AM
Replies: 173
Views: 19,722
Posted By Rea
Thinking of you and hope things change for you...

Thinking of you and hope things change for you soon x
Forum: General Chat 11 Jan 18, 07:43 AM
Replies: 109
Views: 11,349
Posted By Rea
Thinking of you. Hope all goes well x

Thinking of you. Hope all goes well x
Forum: General Trip Planning 23 Dec 17, 09:14 AM
Replies: 11
Views: 1,577
Posted By Rea
I agree with Devonshire Arms at Bolton Abbey. ...

I agree with Devonshire Arms at Bolton Abbey. We've stayed here quite a lot and the scenery is stunning. Ilkley isn't far away with Betty's tea room and Harrogate isn't too far either. If you're...
Forum: General Trip Planning 12 Dec 17, 09:01 AM
Replies: 13
Views: 2,172
Posted By Rea
We like the Devonshire Arms Country House Hotel...

We like the Devonshire Arms Country House Hotel at Bolton Abbey. It belongs to the Duke and Duchess of Devonshire and is part of the Chatsworth Estate. It's in a stunning location with some...
Forum: General Trip Planning 26 Nov 17, 09:06 AM
Replies: 5
Views: 870
Posted By Rea
We've been a few times in April. The locals...

We've been a few times in April. The locals considered it cold but we found the weather to be quite hot on several occasions. I swam in the unheated pool. We've also been and had rain but it soon...
Forum: General Chat 22 Nov 17, 09:07 AM
Replies: 16
Views: 1,966
Posted By Rea
I had it without sedation and I would advise you...

I had it without sedation and I would advise you to have sedation if it's available to you. Mine was a horrible experience but my husband has them with sedation every couple of years, for a long...
Forum: General Trip Planning 20 Nov 17, 06:10 PM
Replies: 6
Views: 1,672
Posted By Rea
Not shopping and you may not be interested in the...

Not shopping and you may not be interested in the cathedral but realised I'd forgot to mention it. There's a cafe inside. It's also warm and quite interesting to browse around if the weather is a...
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