21 Apr 18, 10:25 PM
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#44
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Imagineer
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Sounds like a brilliant trip.
How long did it take for a confirmed diagnoses of stargartds for Evie? It’s what my ds has and they suggested then confirmed it as soon as we’d had the blood tests. Our dd isn’t showing any signs at the moment and we don’t really want to put her through having a blood test so seeing how she goes. Is your other daughter ok? I can’t find our original messages that I’d sent you, maybe last year, or year before? Sounds like she is coping really well. My ds isn’t at Braille stage, but he reads in font 36, has a 1:1 at school and various equipment. He has an amazing thing called a prodigi by Humanware. Purchased through this ehcp for school. They do a Braille version which looks amazing.
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