[Beddy666]

Hi guys,

Not been on for a while, was snooping last night to see on my topic above.
We’ve got an 8month old Theo who’s got several types of epilepsy developed at 2 1/2months old. He’s currently on 3 different anti seizure meds that will be weaning down to two over the next few weeks and introducing Keto to help control his spasms.
Me and the wife have been discussing the future and she’s adamant we will never get back to an abroad holiday or Our favourite happy place Orlando.

Anybody experience with this, and any experiences going with a baby/toddler/child with epilepsy and global development problems.
I feel it’s possible but obviously challenging, are the parks/hotels accommodating for problems etc?

Just looking for some hope to know it’s something to work towards...

Thank you for reading