[DonnaD]

I remember you getting the diagnosis while on your honeymoon. Such a horrible disease, I hope things have become a bit easier for you now. It is amazing what becomes routine in time. My father had an x-linked genetic disease as well. Hopefully like with his Fabry's disease there are better treatments available soon. I hope your whole family enjoys the Starlight trip. It must be helpful having something so lovely to look forward to. I look forward to reading the rest of your trip report.