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Old 8 Sep 19, 10:10 AM  
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#401
Evil queen
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Sending lots of love and positive thoughts at this incredibly difficult time. I hope that your son shows some signs of improvement soon, I canít imagine how difficult this is for you all xx
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Old 8 Sep 19, 04:20 PM  
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#402
Michyloulou
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Oh my goodness, how truly awful. Sending my very best thoughts, wishes & prayers for your son to make a speedy recovery.
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Old 8 Sep 19, 04:51 PM  
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#403
jo williams
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Thanks for update,
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Old 8 Sep 19, 10:41 PM  
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#404
Gryff
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First thank you every body for your good wishes pms emails and bucket loads of pixie dust
Josh is now breathing on his own but is only responding to his older brother and a friend from playgroup he's having a real hard time with medication he's like me 2 paracetamol and I'm out for the count
Today was very hard as he's thrashing about trying to pull out his feeding tubes etc but because of his reaction to meds they need to get him off as much as possible
He faces further surgery this week
He's had fantastic care from his medical team pastoral care team and
An amazing social worker who has been fantastic with our DIL who's struggling to cope due to her autism and own health issue from organising child care and support for her
Again thanks everybody your messages on here and privately have been a great comfort in the darkest moments
The Gryff Clan
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Old 8 Sep 19, 10:45 PM  
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#405
smithlane
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Originally Posted by Gryff View Post
First thank you every body for your good wishes pms emails and bucket loads of pixie dust
Josh is now breathing on his own but is only responding to his older brother and a friend from playgroup he's having a real hard time with medication he's like me 2 paracetamol and I'm out for the count
Today was very hard as he's thrashing about trying to pull out his feeding tubes etc but because of his reaction to meds they need to get him off as much as possible
He faces further surgery this week
He's had fantastic care from his medical team pastoral care team and
An amazing social worker who has been fantastic with our DIL who's struggling to cope due to her autism and own health issue from organising child care and support for her
Again thanks everybody your messages on here and privately have been a great comfort in the darkest moments
The Gryff Clan
Helen, Iím so pleased to hear Josh is breathing on his own. I know he has a long road ahead but this is a big step Iím sure. Thatís great to hear he has a good team of people around him both professional and family.
Continuing to think of you all at this hard time.
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Old 8 Sep 19, 10:46 PM  
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#406
angelbabe
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Originally Posted by Gryff View Post
First thank you every body for your good wishes pms emails and bucket loads of pixie dust
Josh is now breathing on his own but is only responding to his older brother and a friend from playgroup he's having a real hard time with medication he's like me 2 paracetamol and I'm out for the count
Today was very hard as he's thrashing about trying to pull out his feeding tubes etc but because of his reaction to meds they need to get him off as much as possible
He faces further surgery this week
He's had fantastic care from his medical team pastoral care team and
An amazing social worker who has been fantastic with our DIL who's struggling to cope due to her autism and own health issue from organising child care and support for her
Again thanks everybody your messages on here and privately have been a great comfort in the darkest moments
The Gryff Clan
That's positive news Helen, sending Josh and you all best wishes for his continued recovery x
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Old 8 Sep 19, 10:47 PM  
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#407
Feebee2
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I'm so pleased to hear Josh is on the road to recovery. What a relief. Continued best wishes.
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Old 8 Sep 19, 10:49 PM  
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#408
Colette-S
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Sounds like things are starting to improve for him Helen. Hope he continues to recover and is as comfortable and settled as possible
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Old 8 Sep 19, 10:50 PM  
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#409
vowels
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Delighted to hear such good news for your lad.

You are all in our prayers. ♥️
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Old 8 Sep 19, 10:50 PM  
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#410
HevaDuck
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Good to hear your son is improving it must be so hard for you all sending more pixie dust and buckets of love your way fingers crossed for more improvements each day big or small
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