ME/ cfs sufferers.

[frazers mum]

I got diagnosed with this about 6 months ago and I'm at an all time low with it. So many symptoms there's too many to write. Ive started swimming again to try and help with the arthiritis that I also have, but the post exercise fatigue I get makes it hardly worth it. I know there's no quick cure, but has anyone found a change in diet has helped them at all? The GP has told me to attend CBT and GET, but so far I haven't done. Any help/ advice much appreciated.

[thehails]

I’m so sorry to hear your diagnoses, at least now you know what you are dealing with & can move forward.

I try to make things from scratch as much as possible & eat lots of fresh veg & fruit, I also drink loads of water. Don’t know whether it helps but I feel I’m doing something!

The best thing I did was going to see an acupuncturist, for me this was game changing, I went from being bed ridden for weeks at a time to being able to work full time in an extremely stressful job. Since starting to see her I’ve not had a massive crash that’s put me in bed for more than 2/3 days at a time in years, it’s made a huge difference to my life.

I know it may not work for everybody but may be worth a try.

[frazers mum]

Thank you for your helpful reply. I just keep thinking 'i'll feel brighter tomorrow', but never seem to and i feel like all my work/ housework etc.. is building up. Need to learn to pace myself a bit better.x

[Fenland girl]

I went to a nutritionist and completely changed my diet as a result. The results were amazing. I also took quite a few vitamins too (vitamin B complex, zinc, magnesium and CoQ10). I went from not even being able to walk up the stairs without collapsing and being off of work for eight months, to working full time in a stressful trading environment managing a large team. I also saw a reflexologist. For me that really helped with all the aches and tenderness in the muscles when even a massage was too painful to take.

My doctor did also try me on Aciclovir at one point - that worked amazingly for a few months but then I developed side effects and had to come off of it. Not everyone develops side effects though.

When I was first diagnosed I was advised to keep a diary for a few weeks of what I did, what I ate, how I felt and when I slept (most of the time). This really helped me put a bit more structure around my day and pace myself better.

[Scotty]

Someone posted on my town FB page about a film screening for ME/CFS sufferers. Not sure if I can link. The film is "Unrest"

[frazers mum]

Originally Posted by Scotty

Someone posted on my town FB page about a film screening for ME/CFS sufferers. Not sure if I can link. The film is "Unrest"

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I watched this a couple of weeks ago. It was an amazing film, but also scared me a bit about how bad ME can get. 😓