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Old 11 Aug 20, 10:37 PM  
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#11
mandco
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I've had fibro for quite a while and I've learnt to take it day by day- I have bad periods and then better ones but the last year my symptoms seem to be getting a lot worse to the point that some days I'm in so much pain or so exhausted I struggle to even get out of bed.

I'm not expecting much out of it I kind of feel its going to be going over a lot of the things I already know/do at this point but I'm willing to give it a try
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Old 11 Aug 20, 10:48 PM  
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ERICSMUM
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This might sound odd but have you considered reflexology ? I had weekly treatments when my depression was at its worst and I felt genuine relief for a couple days thereafter. It didn’t ‘cure’ me but just alleviated the symptoms enough for me to think straight and relax enough for a good nights sleep.

Might be worth researching to see if it’s a recommended holistic treatment. For your condition.
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Old 11 Aug 20, 10:48 PM  
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mandco
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Originally Posted by enjibenji View Post
Hi, I am currently in the middle of cbt for fibro and other various conditions. I was diagnosed a year ago with fibro and still trying to get my head around it tbh. It takes a while to sink in and admit that things will never be how they were before, also learn to pace yourself. I'm starting to accept it but just seem to be hit with illness after illness. I have now decided to give up work and take life a bit slowly. 🙏
I'm still learning to live with it its a ever changing journey with ups and downs and twists and turns you can only take it a day at a time.
I have found I seem to suffer far more with other ailments and that they can trigger the fibro which in turn makes other things worse. Something as simple as a cough or a cold can trigger a flare up and wipe me out for weeks or even months

It must have been a hard decision to give up work but you need to do what's best for your health
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Old 11 Aug 20, 11:03 PM  
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Gryff
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mandco
It’s the weather that sends me off at Times a 3/4 day spell of nice weather ie warmbut not too hot no sudden dips in temperature then it’s chucking it down cold and the worse bone chilling damp and im floored sore all over even going to,the toilet and our en suite has a higher toilet grab rails elbow taps motion sensor soap dispenser etc
It can be equal to a Everest expedition for me
Don’t even go,there with getting the necessary clothing down at times in a flare I wear
A maxi dress or cafdan going commando round the house if need be I know TMI for most but I’m sure I’m not ot the only one who has too
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Old 11 Aug 20, 11:18 PM  
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mandco
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Originally Posted by Gryff View Post
mandco
It’s the weather that sends me off at Times a 3/4 day spell of nice weather ie warmbut not too hot no sudden dips in temperature then it’s chucking it down cold and the worse bone chilling damp and im floored sore all over even going to,the toilet and our en suite has a higher toilet grab rails elbow taps motion sensor soap dispenser etc
It can be equal to a Everest expedition for me
Don’t even go,there with getting the necessary clothing down at times in a flare I wear
A maxi dress or cafdan going commando round the house if need be I know TMI for most but I’m sure I’m not ot the only one who has too
you're def not the only one

I find the cold def makes things worse I find my muscles get much more achy/spasm more esp in the winter and it can trigger really bad headaches/migraines.
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Old 11 Aug 20, 11:39 PM  
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I’m so lucky I don’t get=the headaches that most folks do but=I find screen time if I’m in s flare can make things worse Alexa is your friend at times from putting on lights when the darker nights come in audio books music and my biggest helper the slow cooker no more faffing with heavy dishes from the oven
I’ve got a cooker hot /cold tap DH uses it more than me the tea or coffee tastes lousy if you use it it be great above the hob for filling pots etc for me but honestly is of no use to me right now
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