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Unread 11 Aug 19, 08:05 PM  
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#1
HappyThoughts
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Join Date: Jun 12
Theme park protocol / hospital help?

Hey all, Im hoping someone can give some advice.

Im taking my 2 kids (who will be 11 & 10) & my brother who will be 22 & has autism, global development delay & epilepsy on our upcoming trip on my own. My brothers seizures have increased over the last few yrs but are still generally only once every few months thank god (though are more frequent on occasion), however he had a mild one today (by mild I mean he didnt need his rescue medication) & it got me thinking; whats the protocol if he was to have a seizure in the parks?

Being on my own means if the theme park (were doing Disney & Universal) insisted on him being transported to hospital to be checked over things could get complicated pretty fast as I doubt there would be room in ambulance for him, me, both kids & EMTs however I couldnt leave the kids on their own or travel separately to my brother as although hes 22 mentally hes still a child & would freak if he was to come round without me there nor would he be able to give valid answers if the EMTs were to ask him questions.

The whole situation is very unlikely to happen BUT as this is the first time Im taking all 3 on my own & after him having one today Im now really stressing over it! Any help would be fantastic!😫
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Unread 11 Aug 19, 08:20 PM  
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Bootrip2
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So much to worry about, sounds a difficult situation to manage. I would get as much medical info that might be nee ded in case he were to have a seizure that could go with him and you could follow with kids in a taxi. Look out for the first aid centres in parks so you know where you can get immediate help and rest if needed. Inform the insurance company just to keep them up to date. seizures are so difficult to predict anyway, hopefully this last one was a one off. I hope that you have a trouble free trip. X
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Unread 11 Aug 19, 08:33 PM  
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DonnaD
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My daughter has non epileptic seizures and has had a couple in Disney. She can feel them coming so can always sit on a bench and then lie down rather than collapsing on the ground. Cast members have asked if we needed help but not insisted on calling for paramedics when I explain we don't need it. How likely is your brother to need an ambulance if he does have a seizure? I can't offer you too much advice but Bootrip2's suggestion of following in a taxi might be your best plan. Disney will do all they can to help you and will definitely make sure you get to the hospital ASAP.

Does your brother wear a medic alert bracelet? My daughter finds it very reassuring to have a bracelet that explains her autism, selective mutism and the Functional Neurological Disorder that causes her seizures. Many people with FND have one to make it clear they DON'T need an ER trip for every seizure.
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Unread 11 Aug 19, 08:36 PM  
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StorybookCircus
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Does your brother wear a medical alert bracelet? You could pack his travel insurance details, a brief medical history and your contact details in a small backpack or bumbag and make sure he wears it, just in case you have to take separate transport. He might feel unhappy being labelled as disabled whilst on holiday but it might give you some peace of mind.
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Unread 11 Aug 19, 08:45 PM  
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HappyThoughts
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Originally Posted by Bootrip2 View Post
So much to worry about, sounds a difficult situation to manage. I would get as much medical info that might be nee ded in case he were to have a seizure that could go with him and you could follow with kids in a taxi. Look out for the first aid centres in parks so you know where you can get immediate help and rest if needed. Inform the insurance company just to keep them up to date. seizures are so difficult to predict anyway, hopefully this last one was a one off. I hope that you have a trouble free trip. X
Thanks hun. I plan to ring the insurance company tomorrow to update them & have a doctors letter already stating all his disabilities & medication so Im hoping that will help. I currently have family members trying to talk me out of talking him but as his sister & his carer I feel like absolute *poo* for even considering it when hes so excited to go😫
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Unread 11 Aug 19, 08:47 PM  
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#6
HappyThoughts
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Originally Posted by DonnaD View Post
My daughter has non epileptic seizures and has had a couple in Disney. She can feel them coming so can always sit on a bench and then lie down rather than collapsing on the ground. Cast members have asked if we needed help but not insisted on calling for paramedics when I explain we don't need it. How likely is your brother to need an ambulance if he does have a seizure? I can't offer you too much advice but Bootrip2's suggestion of following in a taxi might be your best plan. Disney will do all they can to help you and will definitely make sure you get to the hospital ASAP.

Does your brother wear a medic alert bracelet? My daughter finds it very reassuring to have a bracelet that explains her autism, selective mutism and the Functional Neurological Disorder that causes her seizures. Many people with FND have one to make it clear they DON'T need an ER trip for every seizure.
Id say 7/10 times he doesnt need an ambulance but equally he cant feel them coming on (& he has no known triggers) & will literally just fall to the floor with them if we cant catch him in time & has on occasion smashed his head & caused himself a concussion, cuts etc. so Im more concerned Disney/Universal will want him checked over properly more for their own insurance which I completely understand but as I said will make for a very complicated/stressful situation for us 😞
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Unread 11 Aug 19, 08:50 PM  
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#7
HappyThoughts
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Originally Posted by StorybookCircus View Post
Does your brother wear a medical alert bracelet? You could pack his travel insurance details, a brief medical history and your contact details in a small backpack or bumbag and make sure he wears it, just in case you have to take separate transport. He might feel unhappy being labelled as disabled whilst on holiday but it might give you some peace of mind.
He doesnt currently have a medic alert bracelet as he cant stand the feel of them no matter what we do but he does have both a badge (that he wears on his backpack) & a lanyard nicely explaining his disabilities & the lanyard has my contact details on the back of which he likes to wear so Ive brought extras of those for while were there so Im hoping that will help
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Unread 11 Aug 19, 08:54 PM  
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#8
Poppins73
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Join Date: Aug 19
Does he or could he wear a hat/helmet in the parks to cushion any falls? It might give you some peace of mind but I appreciate he may not be comfortable doing so. Is there anyone you can convince to join you on holiday?
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