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27 May 21, 06:59 PM |
#11
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Excited about Disney
Join Date: Sep 18
Location: Midlands
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Mine was IBS as a teenager according to every Doctor I saw. It was also IBS all the way through my 20's even after many tests.
3 years ago I got diagnosed with one of the worse cases of undiagnosed crohn's disease my consultant had ever seen. Two weeks later I was in hospital having a resection. |
27 May 21, 08:04 PM |
#12
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Imagineer
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Thats so scary! How are you now?
We are convinced Mason has had it for a very ling time. We was fobbed off and told it was allergies and eczema. When the consultant saw me after the endoscopy and colonoscopy he said he couldn’t believe Mason was walking around as he was so severely diseased from mouth all the way down to anus. I still think if he had been diagnosed earlier he wouldn’t be so poorly now and it may not have caused arthritis. |
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27 May 21, 08:17 PM |
#13
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Imagineer
Join Date: Sep 08
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Its prob a good idea to ask to send a calprotectin stool sample off. Ask your GP if they can request one. My daughter too has Crohns disease. Baseline bloods are a good idea too.
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Calabay Parc Nov 08 Crowne Plaza New York 2009 Orange Tree Nov 2010 DLP Aug 2011 |
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28 May 21, 06:55 AM |
#14
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Excited about Disney
Join Date: Sep 18
Location: Midlands
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The resection so far has been life changing. Perfectly healthy ( I'm a Gym rat) and for the last two years all my tests have come back showing signs of currently no active Crohn's.
Unfortunately due to the operation I now struggle to control when I need to go to the toilet due to not being to absorb the bile but then I try and do my best to stick to a strict diet...struggle with that in Florida! The only tablets I'm on are for my Iron levels but I was offered medication to support my toilet habits but I have refused them so far. End of the day my case is probably quite rare but when I hear people being diagnosed with IBS it just angers me. Edited at 06:57 AM. |
11 Jun 21, 12:08 PM |
#15
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Excited about Disney
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Your post is so spooky! My DD has had similar symptoms since her teens and has finally been diagnosed with Coeliac disease (yesterday) at the age of 23.
She is relieved to finally know the cause of her problems, but she's devastated because whe loves her food. All she wanted to know was could she still indulge in her favourites of Mickey Waffles and Dole Whip at WDW! |
11 Jun 21, 12:23 PM |
#16
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VIP Dibber
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I world check out to see if he Gluten intolerant. A good few years ago I was seeing my doctor once a month he tried lots of meds then finally he sent me for tests I was in the hospital for well over 10 hours having different things done. A few days latter they where sent to my doctor and the results where weat intolerant. My diert changed and so did my IBS all told borderline diabetic so I will and truly up the creak but never mind
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13 Jun 21, 10:41 AM |
#17
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Imagineer
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Interesting to hear that others have had similar experiences with getting diagnosed!
It is a huge lifestyle change, I won’t deny that, but I definitely still love food as much as I did before and I have new appreciation for it. Researching gluten free eating places for holidays is my new hobby! |
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13 Jun 21, 11:47 AM |
#18
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Imagineer
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Coeliac disease? Ask for a blood test before you cut out gluten. 1 in 100 of us have it.
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13 Jun 21, 10:30 PM |
#19
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Imagineer
Join Date: Apr 14
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Mine is lactose intolerant... but being a teen... she ignores it then suffers!
See if you can keep a diary (it will be the first thing you are asked to do anyway) and it may point to trigger foods. I have IBS-M which is IBS that just can't decide what way it wants to go... and I have just been put on new meds for CSF leak symptoms... gabapentin, that makes my IBS grumble... my usual medication for IBS doesn't help... so now I have more meds... Jeez |
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14 Jun 21, 07:25 AM |
#20
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Imagineer
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My eldest was diagnosed with IBS at around 10, now 16, and given medication to help clog him up and help with the cramping pains. We went dairy free for weeks but found no difference for him. He hasn’t bothered with the meds for at least a year now but still has flare ups.
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