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Additional Support Needs & DAS Help & advice |
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25 Feb 17, 12:15 AM |
#11
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Imagineer
Join Date: Jul 10
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I was diagnosed at 20 so about the same age, it was a struggle at first but there is hope! There are loads of treatments available and it's just a case of finding the right one. But you need to know that there is no cure, only things that lessen the symptoms.
I tried everything, i had a bad reaction to one and i though that was it but after a while I'm in remission I take weekly humira injections and I'm as regular as clockwork if you know what I mean! Just be supportive and let her know that things do get better, I just used to plan my meal times, skipped lunch and found that having 6 snack size meals per day instead of 3 main meals really helped. My condition whilst on the severe spectrum didn't stop me doing anything, you just need to plan ahead. Perversely when on holiday I am better than at home, I put it down to dehydration! Crowns and colitis uk is a great source of help and advice. |
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25 Feb 17, 12:41 AM |
#12
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Imagineer
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My partner has recently been diagnosed and is having great success with a paleo diet.
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25 Feb 17, 01:01 AM |
#13
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Guest
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If I'm going on a long haul flight I will take immodiums, not ideal but it works for me. I have UC. Everyone is different but I kind of know my symptoms before a flare up so adjust to it as I also know I can't stop a flare up.
If I was to do a road trip I would prefer a camper van so it could have a portable toilet. Don't let it stop your life, just work around it. |
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