Breast cancer diagnosis - anyone else in same situation?

[jools1302]

Hello there,

Ive never put anything like this on here before but feeling alone and scared! I am awaiting biopsy results but consultant has told me i have a large rapidly growing tumour in my breast but no spread to lymph nodes. I am panicking about everything, convincing myself I have got brain tumour because ive been feeling sick all day. I know i am being irrational and would love to have someone else to talk to... i have made contact with another dibber who has been so lovely and open but its not breast cancer for her.
Thanks so much sorry for the depressing post.

[Blue nose]

Hi lovely. I didn't want to read and run. No wise words but sending a virtual hug xx

[Elisebev]

Wanted to reach out and say free free to message me. I’m almost 3 years in having been diagnosed with breast cancer in January 2018 which had already spread to the bones. It is very scary to start with but you will feel better once you have a treatment plan in place.

I’ve been there, still going through it -another scan due soon and more than happy to chat

[Disney Planning]

Just wanted to say that sometimes just sharing with others helps. Sending you good wishes.

[Mallky555]

Hi I’m literally just starting my breast cancer journey I waited 3 weeks for biopsy results and hey presto grade 3 triple negative breast cancer
I’ve had lumpectomy for a 14mm tumour however they removed a 32 MM lump and I’m now having to go back I for more surgery to get the clear margins
What I can tell you so far the worst part is waiting for the biopsy results x
Happy to chat anytime x

[Jax1970]

I had breast cancer in Dec 2002 at age 32; similar a quick growing large tumour, but mine had spread to lymph nodes. I’ve been fine for 16 years, but it came back in my bones approx a year ago. I’m doing well on my new treatment, and after surgery I now have no evidence of disease again. Maybe we need to start a group on here for mutual support?

[Elisebev]

Originally Posted by Jax1970

I had breast cancer in Dec 2002 at age 32; similar a quick growing large tumour, but mine had spread to lymph nodes. I’ve been fine for 16 years, but it came back in my bones approx a year ago. I’m doing well on my new treatment, and after surgery I now have no evidence of disease again. Maybe we need to start a group on here for mutual support?

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What treatment are you in. Mine is also in my bones. I think a group on here would be a great idea

[Jax1970]

Originally Posted by Elisebev

What treatment are you in. Mine is also in my bones. I think a group on here would be a great idea

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I’m on palbociclib, letrozole and denosumab. Had to drop dosage of Palbo as my blood counts weren’t recovering, and may move to a 5 week cycle if blood counts stay low. It’s definitely tolerable. How about you?

[Elisebev]

Originally Posted by Jax1970

I’m on palbociclib, letrozole and denosumab. Had to drop dosage of Palbo as my blood counts weren’t recovering, and may move to a 5 week cycle if blood counts stay low. It’s definitely tolerable. How about you?

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Very similar treatment to me. Only difference is I get zometa infusions instead of denosumab. I had my dosage of palbo lowered at the start of the pandemic after a few instances of bloods being too low. The new dosage seems to be working well. I’m still doing most of what I was doing before including working full time and horse riding weekly or at least I was till covid hit. Yard is closed currently and I’m missing it so much. It’s my escape from everything. The one hour a week where I have to focus on something other than my health. My next scan is coming up in a couple of weeks and I’m already dreading the wait for results

[jools1302]

Originally Posted by Jax1970

I had breast cancer in Dec 2002 at age 32; similar a quick growing large tumour, but mine had spread to lymph nodes. I’ve been fine for 16 years, but it came back in my bones approx a year ago. I’m doing well on my new treatment, and after surgery I now have no evidence of disease again. Maybe we need to start a group on here for mutual support?

See more...

Oh a group would be amazing if we are allowed to do that?