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Additional Support Needs & DAS Help & advice |
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26 May 18, 04:00 PM |
#21
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Imagineer
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26 May 18, 04:01 PM |
#22
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Thread Starter
Apprentice Imagineer
Join Date: Dec 12
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What is interesting is when we phoned at 6 pm last night she said s decision to withdraw the dla was made on the 6th April and we were sent a letter but we never got that letter and we received a letter on the 12th April saying your son has been awarded xyz for 2 years etc with the dates and after we sent a mandatory reconsideration in for the mobility we’ve had the care element stopped too !
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26 May 18, 04:02 PM |
#23
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Imagineer
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26 May 18, 04:03 PM |
#24
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Thread Starter
Apprentice Imagineer
Join Date: Dec 12
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Every item on the letter refers to a call to the school no mention of anyone else and his adhd nurse would have agreed with everything we put in the form as she helped us with it she has also just done a home visit to assist with sensory issues in the home so I doubt they have spoken to anyone else
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26 May 18, 04:04 PM |
#25
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Imagineer
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26 May 18, 04:08 PM |
#26
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Thread Starter
Apprentice Imagineer
Join Date: Dec 12
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Exactly the consultant we first saw last year was the one that initially told us about dla and he did a letter he also said that in the future if the benefit was withdrawn it would need to be someone of a superior medical knowledge of adhd asd that could provide evidence they can’t just pick someone with no qualifications to decide how much different your son isn’t to others of the same age?
What’s interesting is now he’s at high school the difference in him and his friends is more noticeable as they are all of out to the park etc without supervision but ds can’t do this as even he realises if something was to happen like a child being mean my son would just hit out with no idea of the consequences of his actions or the feelings of he other person involved he has no idea social emotional ques his older sister should know she has the scars to prove he can explode in seconds I may invite them to come spend a day in our shoes and let them see for themselves 🙈 Edited at 04:10 PM. |
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26 May 18, 04:39 PM |
#27
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VIP Dibber
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Sorry no advice, just want to let you know this does happen quite alot, although at MR stage it does tell you benefits can go up or down, it made me terrified to do an MR, even when DD was diagnosed with additional condition. Her original award was low rate for care,and mobility for ten years, after MR award was high care and low mobility but for 2 years, they obviously think in two years all will be fixed, if only that were true. I wish you all the best with this, it really is a constant battle we could do without. X
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26 May 18, 05:28 PM |
#28
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Thread Starter
Apprentice Imagineer
Join Date: Dec 12
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29 May 18, 08:42 AM |
#29
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Imagineer
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Just wanted to say good luck op let us know how you get on x
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'Twenty years from now you will be more disappointed by the things that you didn't do than by the ones you did do' -just saying |
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29 May 18, 04:43 PM |
#30
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Imagineer
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