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Old 22 Feb 20, 10:59 PM  
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#21
Goldia
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Totally agree with the others. Isabel's hair looks stunning and I really hope you are one of the lucky ones to be on the plane. No need to worry about the insurance. Just be hopeful in the meantime.
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Old 22 Feb 20, 11:29 PM  
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HevaDuck
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Originally Posted by hermione25 View Post
She’s been ok, thanks. We were disappointed to learn a tumour in her spleen had grown this week but all other are stable So swings and roundabouts. Sadly the receding tumour in her mouth/jaw has really made it difficult to eat and this week she dropped below 6 stone so we are meeting with her maxillofacial professor on Monday to discuss having a feeding tube put in her tummy so we can supplement her nutrition. It’s sad to have got to this stage but once it’s done, hopefully she’ll have more energy.

The treatment has made ALL her hair grow through Snow white It’s taken us ages to find a hairdresser who was willing to have a go at colouring it for her. A few told her to go back 3 months after she’d finished her chemo, despite her telling them she was on targeted therapy forever. She had it done today and says she’s feels like a princess tonight



She’s actually just downloaded the poster and registered our house Just watching that part of the programme had all 3 of us with (happy) tears in our eyes because we are so lucky to have made so many special memories there. Xx
Isabel's hair looks so pretty. Sorry to hear about the tumor in her spleen and hope they can offer some further treatment for it. Hope your meeting with the Professor is positive too
If anyone deserves a place on that plane it is your family will keep everything crossed for you
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Old 23 Feb 20, 12:32 AM  
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Feebee2
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Originally Posted by hermione25 View Post
I the Dibb. It’s my (2nd) happy place.
I've just had a look on the Ant and Dec website. Could you nominate Isabel to attend a show? I'm sure there are a lot of us who would support the nomination.
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Old 23 Feb 20, 12:43 AM  
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Disneyleo
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I booked in 2017 it was earlier that year as I booked only a couple of weeks after coming back from dlp in the March
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Old 23 Feb 20, 12:57 AM  
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DisneyDaffodil
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Originally Posted by hermione25 View Post
She’s been ok, thanks. We were disappointed to learn a tumour in her spleen had grown this week but all other are stable So swings and roundabouts. Sadly the receding tumour in her mouth/jaw has really made it difficult to eat and this week she dropped below 6 stone so we are meeting with her maxillofacial professor on Monday to discuss having a feeding tube put in her tummy so we can supplement her nutrition. It’s sad to have got to this stage but once it’s done, hopefully she’ll have more energy.

The treatment has made ALL her hair grow through Snow white It’s taken us ages to find a hairdresser who was willing to have a go at colouring it for her. A few told her to go back 3 months after she’d finished her chemo, despite her telling them she was on targeted therapy forever. She had it done today and says she’s feels like a princess tonight



She’s actually just downloaded the poster and registered our house Just watching that part of the programme had all 3 of us with (happy) tears in our eyes because we are so lucky to have made so many special memories there. Xx
I would so love to see you on the programme getting a place on the plane. Isabel’s hair looks lovely xx
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Old 23 Feb 20, 01:16 AM  
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MargaretMouse
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Have you thought of applying to the Charity Make a Wish.
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Old 23 Feb 20, 07:45 AM  
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LLamb
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Oh Isabel’s hair looks lovely. I’m sure everybody would vote for a nomination or donate to help with the insurance. A little from everyone would cover it.
How old is Isabel? Make a wish is age 3-17.

You can also apply via Disney as I’ve just done it on a Facebook link. (Sorry for the competition)

And yes we booked in 2017 and it was released early as everyone was shocked. I remember being out shopping and seeing the link.

Edited at 07:48 AM.
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Old 23 Feb 20, 08:26 AM  
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Isabel looks beautiful.so sorry about your latest news .we’re all here for you x
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Old 23 Feb 20, 08:43 AM  
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Tinkermom
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[QUOTE=hermione25;14300425]
Originally Posted by Orlando 2004 View Post
What a truly amazing sentiment. To be honest the reason I knew the price of the insurance was because we’d been pricing to see if we could maybe book something at Easter - which we could afford, but Isabel’s insurance was almost the same costs as the holiday so it was paying for both making it challenging.

Our poster is up! We’ll worry about the insurance if 2 Geordies come knocking 😉
Does Isabel have a Macmillan nurse? Our friends daughter has cancer and they have recently returned from WDW, they were getting silly quotes for holiday insurance but their Macmillan nurse had a list of charities that can help, I think in the end they did have to pay a little but definitely no where near what you’ve been quoted. Might be worth asking
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Old 23 Feb 20, 08:53 AM  
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TheHughesCrew
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Originally Posted by hermione25 View Post
She’s been ok, thanks. We were disappointed to learn a tumour in her spleen had grown this week but all other are stable So swings and roundabouts. Sadly the receding tumour in her mouth/jaw has really made it difficult to eat and this week she dropped below 6 stone so we are meeting with her maxillofacial professor on Monday to discuss having a feeding tube put in her tummy so we can supplement her nutrition. It’s sad to have got to this stage but once it’s done, hopefully she’ll have more energy.

The treatment has made ALL her hair grow through Snow white It’s taken us ages to find a hairdresser who was willing to have a go at colouring it for her. A few told her to go back 3 months after she’d finished her chemo, despite her telling them she was on targeted therapy forever. She had it done today and says she’s feels like a princess tonight



She’s actually just downloaded the poster and registered our house Just watching that part of the programme had all 3 of us with (happy) tears in our eyes because we are so lucky to have made so many special memories there. Xx
Fingers crossed for your poster! And Isabel’s hair looks AMAZING

If you or Isabel have any questions about the feeding tube, please do message me x

Edited at 12:07 PM.
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