Go Back   theDIBB > DIBB Community > DIBBing > General Chat
Forgotten Password?
Notices
General Chat This forum is for general topics and chat type threads.
Orlando Attractions
Reply
Thread Tools Search this Thread Display Modes
Unread 8 Jun 19, 12:24 PM  
Link to this Post
#1
Floridatilly
Imagineer
 
Floridatilly's Avatar
 
Join Date: Jan 13
Mobile Type 1 diabetes, periods & the pill

Does anyone have any experience with this?
My daughter is 16, type 1 diabetic and started her periods over 3 years so.
She is under a specialist for her periods because they are so bad.
Not just bad cramps and heavy bleeding. I am talking about vomiting, fainting, flooding, runs, shaking & sweating like she has a bad fever. They send her bloods through the roof and she literally cant move.
She is on some strong pain killers and tablets to reduce the bleeding. They said that she cant go on the pill because she is diabetic.
She is due on next week, the final week of her GCSEs
She also cant take the tablets that prevent periods.
Specialist have said that she will hopefully grow out of it.
Floridatilly is offline Girl Mouse Click to view Members Gallery Click to view Members Trip Plans
Our next WDW trip
Reply With Quote
Unread 8 Jun 19, 12:33 PM  
Link to this Post
#2
Mary A
Imagineer
 
Mary A's Avatar
 
Join Date: Apr 10

Mary A's Reviews
Hotel Reviews: 1
Mobile

Have they thought about endometriosis? I had my first operation for endo at 14.
Won't help for next week's exams but thinking longer term
__________________

First visit 1989, last visit March 19. Next holiday Rome September 19. Washington, Key West & Orlando May 20
Mary A is offline Girl Mouse Click to view Members Gallery Click to view Members Trip Plans Reply With Quote
Unread 8 Jun 19, 12:33 PM  
Link to this Post
#3
g1970
Imagineer
 
Join Date: Jan 13

g1970's Reviews
Hotel Reviews: 5
DIBB Villa Reviews: 1

theDIBB Guidebook
Guidebook Photos: 3
I'd ask for a second opinion on the advice given about the pill...

diabetes/diabetes-...tive-pill.html
__________________
9 years in a row, having 2019 off. Back in 2020
g1970 is offline Girl Mouse Click to view Members Gallery Click to view Members Trip Plans
Another 3 weeker :-)
Reply With Quote
Unread 8 Jun 19, 12:59 PM  
Link to this Post
#4
dubletrub
Imagineer
 
Join Date: Sep 09

dubletrub's Reviews
DIBB Villa Reviews: 1

theDIBB Guidebook
Guidebook Photos: 3
Mobile

Have you asked about the progesterone only pill, I remember reading about this for diabetes when I was researching for my daughter. Although not diabetic she had horrendous migraines so she couldn't go on just any pill.
She has the progesterone only implant now as she was terrible at remembering the pills.
__________________
Jenny
July/August 2010 ~ Villa, Mission Park & RPR, July/August 2012 ~ DIBB Villa, Highgate Park & RPR, July/August 2014 ~ Sadly had to cancel, August 2019 ~ POR 1st time on site
New York 2017, trip report HERE
dubletrub is offline Girl Mouse Click to view Members Gallery Click to view Members Trip Plans
POFQ, 1st time onsite :)
Reply With Quote
Unread 8 Jun 19, 01:07 PM  
Link to this Post
#5
ch1ps
Imagineer
 
ch1ps's Avatar
 
Join Date: Jan 11

ch1ps's Reviews
Hotel Reviews: 3
Restaurant Reviews: 5
No real advice, as I'm a lot lot older, and had a coil fitted prior to diagnosis.

Does your daughter use a Libre or Dexcom/CGM? This can be useful as through different phases of the monthly cycle insulin requirements change. That isn't going to help with the symptoms you've described, but might help for amending amount of insulin being taken.

I hope you get this sorted out soon
__________________
Done: 2000, 2003, 2011, 2015 Quality Inn International, 2013 Clarion Inn LBV, 2015 POFQ, 2016 Avanti Resort, 2017 DLP Sequoia Lodge, 2018 POR
Upcoming: Rosen Inn Interational
ch1ps is offline Girl Mouse Click to view Members Gallery Click to view Members Trip Plans
Back to the Rosen Inn International
Reply With Quote
Unread 8 Jun 19, 01:51 PM  
Link to this Post
#6
Excited83
VIP Dibber

 
Join Date: Oct 15
Is her specialist a gynaecologist? Or someone who looks after her diabetes.
People with type 1 diabetes can use any type of contraception. This is a screenshot of the UKMEC guidelines that doctors use to determine if a contraception is safe. To be specific, this applies to when theyre used for contraception, not for other reasons like this. But it shows theyre safe. If she hasnt seen someone specialising in Gynaecology or Sexual Health then it might be worth doing that.

Edited at 01:52 PM.
Excited83 is offline Girl Mouse Click to view Members Gallery Click to view Members Trip Plans Reply With Quote
Unread 8 Jun 19, 03:43 PM  
Link to this Post
#7
Clare
VIP Dibber

 
Clare's Avatar
 
Join Date: Mar 02

Clare's Reviews
Hotel Reviews: 6
Restaurant Reviews: 6

theDIBB Guidebook
Guidebook Photos: 17
Guidebook Reviews: 1
I had endometriosis from within a year or two of starting my periods, my diabetes was uncontrollable, by that time Id been a type 1 for 7 years. I was under the care of a paediatric diabetic professor at the Middlesex Hospital London (hospital no longer there and Im sure the Professor isnt around either), he felt there was a link between type 1 diabetics and endometriosis/period issues due to immune issues/hormone issues. I was 14 when I went on the pill and stayed on it for over 25 years with no issues at all.

Im now in the menopause which is causing havoc with my blood sugars, my consultant endocrinologist is keen for me to start HRT as she feels it will help my blood sugars.

Unfortunately some doctors are so blinkered, it might be worth seeing if your GP will do a referral to a gynaecologist who specialises in younger patients. Hope you get it sorted.
__________________

1992/1994/1995/1997/1999/2001-offsite/POFQ * 12/2004-RRP/CSR/YC * 12/2006-PB/YC CL * 05/2007-BWI * 12/2007-GF CL/BWI CL * 05/2009-BWI CL * 05/2010-BWI CL *
11/2011 - BWI CL - Trip Report
12/2012 - BC CL - Trip Report
05/2014 - WL CL/GF CL - Trip Report
Clare is offline Girl Mouse Click to view Members Gallery Click to view Members Trip Plans
Some well deserved time away
Reply With Quote
Unread 8 Jun 19, 04:52 PM  
Link to this Post
#8
Floridatilly
Thread Starter
Imagineer
 
Floridatilly's Avatar
 
Join Date: Jan 13
Mobile

She is under the gyno specialist and they have given her Tranexamic 500mg. 2 three times a day
Mefenamic acid 50mg. 2 three times a day.
she does have the libre and I fortunately has poor control of her blood sugar levels.
Her periods are not normal, she can go through 4 extra pads in one hour and still flood through clothes etc and the pain is horrific to the point she is pale, sweaty, sick then faints.
We have to use this medication for a few months whilst keeping a diary and she will be seen again in 3 months.
During this time her bloods are over 25! No matter how much insulin we give her.

I honestly dont know much about period issues but I always thought they tried the pill to get hormones in control and help with the bleeding. But the specialist said no due to her diabetes.
Its such a shame because she is worried sick for next week.
On her last period the school rang me because she could not get up and there was mess all over her chair etc. Luckily she was on health & social and there are no boys in that class.
Floridatilly is offline Girl Mouse Click to view Members Gallery Click to view Members Trip Plans
Our next WDW trip
Reply With Quote
Reply
Attraction Tickets Direct

Thread Tools Search this Thread
Search this Thread:

Advanced Search
Display Modes

Forum Jump

Holiday to Florida with Florida4less

All times are GMT +1. The time now is 01:55 AM.


Powered by vBulletin - Copyright © 2000 - 2019, Jelsoft Enterprises Ltd.

theDIBB Menu

American Attractions

US Dollar Rates
ASDA  $1.2293
CaxtonFX  $1.2126
Covent Garden FX  $1.2308
FAIRFX  $1.2150
John Lewis  $1.2474
M&S  $1.2042
Post Office  $1.2224
Sainsburys  $1.2264
TESCO  $1.2280
Travelex  $1.2073
Updated: 01:30 17/07/2019

theDIBB Charities
Cancer Research UK
DIBB Members have Donated: £10,130
£


Macmillan Cancer Support
DIBB Members have Donated: £1,085
£

Euro Rates
ASDA  €1.0919
CaxtonFX  €1.0821
Covent Garden FX  €1.0920
FAIRFX  €1.0835
John Lewis  €1.1063
M&S  €1.0670
Post Office  €1.0860
Sainsburys  €1.0897
TESCO  €1.0911
Travelex  €1.0780
Updated: 01:30 17/07/2019

Orlando Weather
Florida Time
Tue 16th Jul 8:55pm
Now: 29C/84F
Heavy Intensity Rain
Heavy Intensity Rain
Thunderstorm
Thunderstorm
Cloud Cover: 75%
Rainfall: 4.06mm
Wind: 7mph - SW Arrow points to where the wind is coming from.
Pressure: 1020mb
Humidity: 88%
Illuminations Smoke
Updated: 00:50 17/07/2019