Dla stopped

[minnie29]

My daughter has ADHD and and we spent a fourtune on extra curriculum activities. Horse Riding, Drama classes etc. She just had to be entertained ALL the time, but no routine change! She was a really hard child to deal with! Anyway, her nan told me to apply for some sort of benefit to help with the cost of things (can't remember the name of it). I was very reluctant because I used to feel ashamed of her behaviour and thought I should just get on with it (she's 20 now so i'm going back some years). I ended up applying and the doctor GP, and her ADHD doctor and me all ticked the right things on the form, all true statements! ... Then, the Head Teacher ticked the boxes to say she did't require the benefit! Even though she didn't teach my daughter and we were constantly being brought in the school - I just left it at that, but I do look back and think that I should have appealed and proved my DD was very difficult in school also. She was exhausting, our whole family suffered and it really gets you down dealing with children with these problems, peopke judge you as well which I didn't used to deal with too well.
She's much better now as an adult, still a handful and crazzzy lol but much better

Edited to say: good luck I really hope it all gets sorted.

[Floridag1rl]

If the mandatory reconsideration has been turned down and the DLA stopped they don't normally look at doing another one, it is normally only appeal you can go for. You may be lucky but I have never known it. Appeals take on average around 9 months to get a date. You also have to request to go for an appeal and for adults it has to be accepted by the appeals service not sure if this is the case for children.

[Mallky555]

We spoke to someone at dla on Friday apparently my sons case has been reopened for review and we asked if we had to go to appeal now or can we ask for a mandatory reconsideration of the fact that all help has now stopped the gentleman told me I can apply for MR however he also told me that the person that made the decision will ring on Monday to speak to us so we shall see what happens with that. Not holding out much hope as we typically have rotten luck 🙈

[Floridag1rl]

Originally Posted by Mallky555

We spoke to someone at dla on Friday apparently my sons case has been reopened for review and we asked if we had to go to appeal now or can we ask for a mandatory reconsideration of the fact that all help has now stopped the gentleman told me I can apply for MR however he also told me that the person that made the decision will ring on Monday to speak to us so we shall see what happens with that. Not holding out much hope as we typically have rotten luck 🙈

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I don't think you get to speak to the actual decision maker ( you never used to in case the decision went to a tribunal) but if you are at all unhappy about the way it is being handled ask DLA for another decision maker to look at the case, these decisions are made through case law and how what is written down is interpreted, you could ask what criteria was used to make the current decision, if it was the conversation with the school ask who they spoke to at the school and then ask for the tel call to be made again with the person you think they need to speak to at the school. Don't forget if the mandatory reconsideration doesn't over turn the original decision to ask for all the paperwork in making the decision. You will need this for an appeal, you then know what you are dealing with. At appeal you normally have to include additional information that was not used in the original decision, this is were it gets tricky cause at that stage are asking an appeal panel to overturn a decision but all the original info you supplied when you applied for DLA will have been looked at. People need a lot of help with filling in these forms because what you think is relevant to get the benefit sometimes isn't.

[Mallky555]

Yes the guy I spoke to said it’s the person that made the decision that is contacting us he said it didn’t used to be but the rules have changed 🙈

[Mallky555]

We sent in way more than we had when we originally made the claim 2 years ago the only change is he now takes 40 mg of medication a day instead of 30 and the school give him the extra 10 mg at school so they are actually doing more than they were for him 🙈
I just hope they ring tomorrow my nerves can’t take much more 🙈

[Mallky555]

One part in the notification states as my son hasn’t attended for a sleep examination then problems at night are down to routine as it appears that the specialists don’t believe he needs assistance from medication to sleep at night
It actually states inall the paper work on a letter from his specialist nurse that we declined medication for sleep because a) we feel he is already medicated enough and b) it already takes 1.5 hrs to get him up and ready for school I certainly don’t want to be dealing with drowsiness on top of that!

[Floridag1rl]

Hopefully you will get the current decision over turned, but if you have to go for appeal and they have turned you down with all the evidence you have sent in then the fact that the only thing that has changed is medication dosage this may not be enough to win your appeal. At appeal they look for additional information that may have been overlooked when you sent in your application.

[buryboy]

good luck for tomorrow x

[Mallky555]

Still nothing no call back 🙈we have phoned his specialist nurse and asked for supporting letter ready for appeal 😩