Interesting doctors appointment

[THE WIZARD]

Originally Posted by Feebee2

It's a patient liaison service. The hospital switchboard would put you though.
We've used them a couple of times to speed up appointments.

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Excellent idea to contact PALS at your hospital. I did just that when I had two appointments cancelled, they came straight back to me saying they had been in touch with the relevant team who would be in touch. The 'relevant team' contacted me 2 days later with an appointment later that week. Put PALS in your hospitals search box. Sometimes you really have to push an issue when it's such a dire case as your poor boys.

[soooexcited!]

Originally Posted by Floridatilly

His fatigue is shocking. He comes out if school crying it is also causing him to be rather grumpy too.
How old is your son? I hope he can find something that works 🤞🏻
My little one is 7

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Poor lad that's very young. I would go with the suggestion of contacting pals. Hope you get some answers soon.x

[Tweety1]

Originally Posted by Floridatilly

His fatigue is shocking. He comes out if school crying it is also causing him to be rather grumpy too.
How old is your son? I hope he can find something that works 🤞🏻
My little one is 7

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Oh my he has crohns at 7 the poor little thing
I can’t believe you can’t get an appt until next year. I really hope he feels better soon xx

[Floridatilly]

Thank you all so much !
I am going to ring PALS this morning, I had never heard of them. Just goes to show how amazingly helpful the dibb is x x x

[Floridatilly]

A little update.
I emailed the Gastroenterology department (after chasing my tail trying to get an email address) including the stool movement diary and a selection of lip photos this morning.
A team member rang me to say that he is having a flare at the moment so does need to be seen asap and the consultant will ring me before or on Monday. Due to the severity of the flare she advised that he should stay off school because his immune system is compromised. This is until he starts his treatment and shows improvement.
She said the consultant will advise in more detail when he calls.
I really don’t want him to miss any more school but his health comes first. Luckily there is only a couple of weeks left at school.
The consultant may possibly say he can still go to school 🤷 But until I speak to him I will keep him off then do as he advises.
X