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16 Jan 21, 10:21 AM |
#1
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Apprentice Imagineer
Join Date: Mar 12
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Anyone suffer with dupuytrens contracture
Morning,
Anyone have this condition? I have previously had 2 operations, the second more successful than the first,(on the same fingers/hand) I don’t have any of the common “risk factors” of having this disease but it’s now getting worse again, obviously it’s not an emergency so won’t be going to the doctors just now but wondered if anyone has any experience of this & whether multiple operations actually work, google searches are very mixed about success rates! Thank you
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: Lesley : |
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16 Jan 21, 10:41 AM |
#2
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VIP Dibber
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I thin you can get onjections now to release the contracture, they are spaced out and manipulated to make things better, but you would need a gp referral to orthopaedics or hand surgeon
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16 Jan 21, 10:42 AM |
#3
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VIP Dibber
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Called Collagenese injections . 😁
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16 Jan 21, 10:44 AM |
#4
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Thread Starter
Apprentice Imagineer
Join Date: Mar 12
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Thank you will go google these, no one has mentioned them to me before.
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: Lesley : |
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16 Jan 21, 11:14 AM |
#5
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Imagineer
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My husband has this, apart from when he was first diagnosed years ago, he's never had anything done about it, it has got a lot worse though but at nearly 70 he said he'll just put up with it now. 😳 He reckons as long as he can lift a suitcase then he'll be fine. I know it can run in families, his Auntie had it too.
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16 Jan 21, 11:26 AM |
#6
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Imagineer
Join Date: Sep 08
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I have it in both hands although no contracture yet but very painful nodules in both hands, I had been seeing a hand specialist but obviously only had telephone consultations for nearly a year now, I also have Ledderhose disease which is almost the same but in my feet, so both hands and both feet, I use CBD oil orally and hemp gel that I massage in, it is so painful it wakes me up in the night, I take far too many painkillers.
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16 Jan 21, 01:38 PM |
#7
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Thread Starter
Apprentice Imagineer
Join Date: Mar 12
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That’s sound awful can I ask what CBD oil is? I have a new nodule between my pinkie & next finger my 2 operations have been on my pinkie & palm
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: Lesley : |
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16 Jan 21, 01:40 PM |
#8
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Thread Starter
Apprentice Imagineer
Join Date: Mar 12
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Has his spread across his hand? No one else in my family has ever had it, I was late 30’s when it was diagnosed which I was told was young to have it & that it’s more common in men!
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: Lesley : |
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16 Jan 21, 02:16 PM |
#9
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Imagineer
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I've just taken a photo of both his hands, I've never really looked at them for a while and I was 😳 He says it doesn't really bother him that much and he won't be going for an op. I think it's probably 20 years since he was diagnosed.
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16 Jan 21, 03:23 PM |
#10
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VIP Dibber
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My husband had this, it is apparently a scandanavian disease, he had an operation on his hand many years ago and while his hand is quite scarred but it has given him great freedom of movement in it ever since.
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