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Old 15 Jan 20, 12:25 AM  
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#1
Tillyfloss
Stuck in the Tower of Terror
 
Join Date: Aug 19
Location: Northwest
Mobile Finally booked!

Seems so long ago I asked for advice! We are almost checked in on the 6 night western Caribbean on 29th March.
There are 2 of us. Will transfer to the port from Royal Pacific Resort and return to the Poly.
Iíve used Uber a lot but never for that distance - is it a reliable way to get to the port? What time would you suggest arriving?
Iím thinking Disney transport back to the Poly as there are only the 2 of us.
Excursions - not really explored the options or availability !
Any tips or suggestions for DIY welcome.
So looking forward to this trip.
Thanks for advice and help.
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Old 15 Jan 20, 06:04 PM  
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Loopylooloo
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I cant advise on travel but I wanted to say your trip sounds amazing!
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Old 15 Jan 20, 09:48 PM  
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Tillyfloss
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Stuck in the Tower of Terror
 
Join Date: Aug 19
Location: Northwest
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Originally Posted by Loopylooloo View Post
I cant advise on travel but I wanted to say your trip sounds amazing!
Thank you! I am looking forward to it. Itís a very special trip - my daughter had a liver transplant at the age of 9 months. On our second day at sea we will celebrate her 30th anniversary of the surgery!
Amazing when we didnít think she would reach her 1st birthday.
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Old 16 Jan 20, 12:01 AM  
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Loopylooloo
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Originally Posted by Tillyfloss View Post
Thank you! I am looking forward to it. Itís a very special trip - my daughter had a liver transplant at the age of 9 months. On our second day at sea we will celebrate her 30th anniversary of the surgery!
Amazing when we didnít think she would reach her 1st birthday.
Bless you thats very special x
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Old 16 Jan 20, 01:38 PM  
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danisleigh
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Originally Posted by Tillyfloss View Post
Thank you! I am looking forward to it. Itís a very special trip - my daughter had a liver transplant at the age of 9 months. On our second day at sea we will celebrate her 30th anniversary of the surgery!
Amazing when we didnít think she would reach her 1st birthday.
Wow I didnít realise there was another child liver recipient on here! My son is 18 and had his aged 16 after he was born with liver disease and developed liver cancer. Itís amazing to hear your daughter has done so well for so long x
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Old 16 Jan 20, 03:53 PM  
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Tillyfloss
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Stuck in the Tower of Terror
 
Join Date: Aug 19
Location: Northwest
Mobile

[QUOTE=danisleigh;14243954]Wow I didnít realise there was another child liver recipient on here! My son is 18 and had his aged 16 after he was born with liver disease and developed liver cancer. Itís amazing to hear your daughter has done so well for so long x[/QUOTE

She was very lucky, at the time things were very different and there was a lot of trial and error with the babies. Thankful every day for the courage of her donors family.
She has been very healthy and competed for team GB at several world transplant games, sheís taken a break for the last couple of years. Does your son take part in the games?
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Old 16 Jan 20, 06:10 PM  
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danisleigh
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[QUOTE=Tillyfloss;14244185]
Originally Posted by danisleigh View Post
Wow I didnít realise there was another child liver recipient on here! My son is 18 and had his aged 16 after he was born with liver disease and developed liver cancer. Itís amazing to hear your daughter has done so well for so long x[/QUOTE

She was very lucky, at the time things were very different and there was a lot of trial and error with the babies. Thankful every day for the courage of her donors family.
She has been very healthy and competed for team GB at several world transplant games, sheís taken a break for the last couple of years. Does your son take part in the games?
No he hasnít yet, he is playing in a transplant football tournament In a couple of months though. He is doing well, his 2nd transplant anniversary is next month so itís still pretty new for him. Which hospital is your daughter monitored at?
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Old 16 Jan 20, 08:05 PM  
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Tillyfloss
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Location: Northwest
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She goes to the QE in Birmingham. She was treated at the childrenís hospital in Birmingham but had to have her surgery and recovery at the QE as they did not have the facilities at the CH.
Where was your son transplanted?
Iím sure he will enjoy the football, we know several of the team!
Small world!
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Old 16 Jan 20, 08:47 PM  
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danisleigh
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Originally Posted by Tillyfloss View Post
She goes to the QE in Birmingham. She was treated at the childrenís hospital in Birmingham but had to have her surgery and recovery at the QE as they did not have the facilities at the CH.
Where was your son transplanted?
Iím sure he will enjoy the football, we know several of the team!
Small world!
He has been under prof Kelly at Birmingham childrenís but had his transplant at the QE as he received a split liver and the other half went to a baby who had her op at the childrenís and they can only do one transplant at a time. He has his first transition appt next month at the QE now he is 18, will be weird to say goodbye to the childrenís after all these years.
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Old 16 Jan 20, 09:04 PM  
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Tillyfloss
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Stuck in the Tower of Terror
 
Join Date: Aug 19
Location: Northwest
Mobile

Originally Posted by danisleigh View Post
He has been under prof Kelly at Birmingham childrenís but had his transplant at the QE as he received a split liver and the other half went to a baby who had her op at the childrenís and they can only do one transplant at a time. He has his first transition appt next month at the QE now he is 18, will be weird to say goodbye to the childrenís after all these years.
What an small world it is!
My daughter was one of the profís first patients - she was Ďjustí Dr Kelly then but just as wonderful!
I think transition was more difficult for me but my daughter didnít leave BCH until she was 23!
Iím fairly new to the dibb but happy for you to message me if you want to in case anyone objects to the thread drift.
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