Sad for DH. Just a little update.

[hipthehippo]

Thinking of you both. It's OK to have a little time to yourself to recharge, whether it's lunch with friends, a glass of wine , or a pedicure. I'm glad you're still making good memories

[Sandra & co]

So sorry to hear this, sending love and ((((hugs)))) to you both xx

[Adora]

I'm really sorry to hear this, I wish I could say something more helpful, but I'm thinking of you and your husband and family. X

[Feebee2]

Thank you all, got back home this morning and DH much more mellow, I don't think it was as bad as he thought and he'd got on really well with his nurse.

[Macca04]

Glad you enjoyed your time away an DH coped.

Been sitting here feeling a bit sorry for myself when I read this puts it all into perspective.

I hope you and DH stay strong, thinking of you take care.

[corey1]

So sorry to hear this. It's a terrible illness and you really do need to look after yourself too. Thinking of you both

[Lindaelaine]

Originally Posted by Feebee2

Just thought I'd post an update after all the kind messages which are appreciated.

I'm sitting in the lounge at the Bridge Hotel Buttermere, large glass of wine in hand. Tonight for the first time Hospice at Home have come to look after DH.
To say he wasn't happy about that is an understatement! However as I've tried to explain we are in this together but I need just a little break.

So DH is still with us which surprises me really as he deteriorated so rapidly before he was diagnosed with MND I didn't think he'd last the year out.
He has ventilation 10 hours per night with top ups during the day. His breathing is horrendous and he can't walk at all. He is losing use of his hands and his voice is weak. He survived pneumonia in January. So underneath I think he is pretty strong.

We continue to enjoy life and take each day as it comes. We have discovered Haven have very good accessible caravans. We have had at least 6 separate weeks away and loved those breaks.

Anyhow I'm sure there was something else I meant to say but there's a large glass of red wine calling me away...

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I’m so sorry to read about your awful situation , like others have said , you need some “ me “ time for some respite , glad you have managed some breaks away together too , heartbreaking to have to watch your loved ones going through something like this , my heart goes out to you both x

[Lindaelaine]

Originally Posted by Colette-S

You do need that break and should make the most of it. Hospice at home is a lifesaver, I’ve been using this service for 5 months now and I don’t know how I would have survived without them.
Hoping you fund the strength to get through this and you continue to get support xx

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Colette my thoughts are also with you , take care of yourself too , nothing worse than watching a loved one suffer x

[olgaandcoda]

Just to add that the Dibb family are a great lot and you can get support on here whenever you need it. Take care of yourself xx

[Colette-S]

Originally Posted by Lindaelaine

Colette my thoughts are also with you , take care of yourself too , nothing worse than watching a loved one suffer x

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Thank you Linda x