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3 Mar 19, 10:06 PM |
#1
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VIP Dibber
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Crohns
Hi
My DS who is 14 in April has beeb diagnosed with crohns. In April he will be starting the enteral feed plan for 6 weeks . Any advice? Dreading it as food is a big part of our social family life. That said he is positive and we are fully supportive.
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fantasy |
4 Apr 19, 10:05 AM |
#2
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Imagineer
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This is a bit late as I’ve only just seen the post
I too have Crohn’s disease. I have frequently had to go on the enteral feed plan. TBH it was too bad, I used to go out for dinners and lunches and focus on the fact that it was doing me good. I did have terrible salt cravings. I was allowed to drink bovril and a dietician gave me a tip sprinkle salt On a top of a tomato and lick it Biggest issue is not really hunger but I was thirsty. Also when coming off, take it really slowly |
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