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Old 13 Jun 21, 01:08 PM  
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#11
Slore
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Excellent thank you. Theyíre such tiring days. Itís been a few years since we have been and I struggled then. Itís all about getting the best out of the experience and if I need assistance then so be it. Iíll take a look at the recommendations too. Thanks again!
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Old 2 Jul 21, 05:38 PM  
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scottish mama
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Iíve got ME/CFS and Fibromyalgia and would ditto all the advice here

1. mobility scooter. I rent over there form the likes of Apple Scooter and get the ones which come apart to go into the boot, as theyíre cheaper than from the parks and useful when youíre having a non park day. I donít take my own one as Iíve always been a bit worried about it getting damaged en route.
2. Disabled badge- definitely apply for the red badge temporary disabled parking permit, which can be used all over Florida, is $15 (or was pre-covid).
3. Have pool days to recover.
4. Notify guest services (though they donít always recognise ME or at least thatís been my experience over the past 20 years of going).


Iíd also add to get special assistance with your airline and think of your worst day when answering their questions ie can you climb stairs/ how far can you walk. Itís amazing how far they think ďjust a short distanceĒ is and most airports are HUGE! for us to walk. If youíre hiring a scooter in the US you can get a wheelchair or buggy in the airport to get you around.

I tend to go to the the parks later and for longer, having a long lie and leisurely start and take lots of rests during the day, followed by a couple of pool days afterwards. But then we donít do all the parks as we know this is just too much for me. When staying onsite Iíve also let the family go off on their own for most of the day while I rest, then DH comes back for me later.
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Old 2 Jul 21, 05:47 PM  
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Ps I totally get where your coming from re getting a scooter at home. Iíve had ME since I was 28 and it took a long while to accept I need that extra help, and didnít want to be classed as disabled. However, I look at my scooter as enabling me to conserve my energy for the activities I actually want to do eg it enables me to go for a walk with friends and enjoy a coffee with them, or go out for a meal or to the pub. It also lets me go onto town for shopping and saves my energy for actually being in the shop.

It is a mind shift and is very hard to do initially, especially when so young, but it does open up opportunities to still be involved on the days youíve got reduced energy. My scooter, Betty, has been an absolute godsend as she enables me to do all the things above when Iím able to get out the house. Sheís been my new legs and has definitely kept me sane.

Also, if you do rent in in Florida, Iíd get one with the captainís chair as these are by far the most comfortable.
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Old 3 Jul 21, 07:46 AM  
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Thank you for the advice, it really is so appreciated.

I have plenty of time before our trip so it gives me time to test things out. Whilst I have a good idea of my pacing Iíll know a lot more.

Iíve been approved for a Merlin RAP (their version of DAS) so I can test that out in a few weeks. Itís sad to hear your comments about the DAS pass though as thatís one thing Iím really hoping to get as I think itíll make such a difference to my day as we donít need to rush to the parks.

Iíve booked rest days and later starts so things will be at a much chilled pace.

Weíve got a universal premier hotel so express passes for the universal days too so again much less stress and waiting when can sit and chill somewhere cool.
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Old 3 Jul 21, 11:24 AM  
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Guest Services cannot ask for evidence of your disability due to the Americans with Disabilities Act, they have to take you at your word.

They don't give a DAS Card for named conditions, instead they will ask you why you are unable to queue as usual. So talk about your symptoms and how queueing in the heat will affect them, stress that it will severely curtail your visit otherwise.

Ask for a pass on your first visit for the duration of your stay otherwise you may have to ask at each park you visit which will significantly eat into your time.

When you go to guest services all members of your party will need to be with you so they can be added to the pass as well. They will usually add up to 6 members of your party to the pass.

Hope this helps.

Good luck with your Merlin trip.
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Old 4 Jul 21, 10:47 PM  
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Oh no, I didnít mean to worry you!
Tbh itís only happened a few times and I think I may have just had an awkward or misinformed person on the desk, as she was very sorry but adamant I couldnít have one. I was so taken aback and embarrassed I just wanted to get out of there, so was just wanting to forewarn you so you could be ready to state your case/ stand your ground. Definitely ask, and do as Jennywren suggests, explaining fully the issues.

Itís good that youíve got a trial run of the DAS with Merlin, and Iím sure youíll love your trip to Florida. Iím an adrenaline junkie so I get my fix on the rollercoasters rather than hillwalking, climbing, mountain biking etc as in days of old.
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Old 17 Jul 21, 09:30 AM  
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Mental Minnie
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Originally Posted by Slore View Post
Thank you again for this, itís so useful.

Iím going to do some research on mobility scooters but, on a personal level, itís still tough for me to accept as when we go Iíll only be 30.

I definitely donít cope in heat and we can only go in school holidays as teaching profession; so Iíll be looking at some cooling tips.

We donít normally drive when on holiday as both like to take a rest from it but if worse comes to it Uber/Lyft will be our friends.

Iím so appreciative of all of this advice though so thank you so again. Itís helping putting my mind at ease!
I'm also finding this very useful, so thank you. My last trip in 2017 I was just diagnosed with Fibromyalgia also have very swollen and painful arthritic knees and IBS which in turn gives me bouts of depression, as i just can't cope with the pain. I was 45, so a good bit older than you but still too embarrassed to use a scooter. A friend gave me a rollator with a seat to take and i thought i'll take it but i wont use it because I'm too young. It was a life saver, I used it everyday, everywhere. It folds up like a buggy, so neatly say beside me on the bus. I went at my own pace and family could run ahead if they wanted (they didn't). The good thing with the DAS pass is that someone in your party can run and get your return time, they just scan their band. You don't need to be there just to get the time and as soon as you use it you can get another one. I found this a great help. With the seat on the rollator, i could just sit down when i needed and have a drink (recommend the coke float from the ice-cream shop MK)cool down and take pain relief if needed. I'm learning stuff on this thread though that I didn't know. Does anyone know where o contact to get a parking pass?
I go next year in the middle of the summer for my 50th(should have been this November but cancelled)and now have my own rollator, all pimped out for the weather. lol
It has a rechargeable, wrap around fan, attachable bag, umbrella holder (rain or shine) and I will get a scooter if I can't cope. I will find that hard but it I have to, I will. The most important thing is having the most pleasant, comfortable holiday as possible. Have a great time.
I find that the whole thing with an Orlando holiday is the planning, no matter what your party make up is. Plan what you can, then go with the flow.
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Old 17 Jul 21, 10:12 AM  
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Hi

Details of how to apply can be found here :

octaxcol/motor-vehic...king-placards/

Unfortunately because our UK blue badges do not have the wheelchair symbol printed on them (they are only in hologram) our blue badges cannot be used in Florida.

The system seems to have changed slightly since I last applied but I have always found the staff at the Tax Collectors Office very helpful, if you e-mail them or give them a ring.

Hope this helps.
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Old 17 Jul 21, 11:26 PM  
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Mental Minnie
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Originally Posted by Jennywren View Post
Hi

Details of how to apply can be found here :

octaxcol/motor-vehic...king-placards/

Unfortunately because our UK blue badges do not have the wheelchair symbol printed on them (they are only in hologram) our blue badges cannot be used in Florida.

The system seems to have changed slightly since I last applied but I have always found the staff at the Tax Collectors Office very helpful, if you e-mail them or give them a ring.

Hope this helps.
Thank you. I went in and had a look. We don't go until next July but I will contact them on Monday and see when i need to apply. Thanks again.
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