Sad for DH. Just a little update.

[Melvin Pearce]

Our thoughts and prayers are with you. Hoping that you get as much help as possible.

Melvin and Lesley

[Mr Tom Morrow]

OP. I am so sorry to hear your news. Things are going to be tough and I wish you all the best for the future. Grab all the support you can and pop on here when able as we are all thinking about you. Best wishes.

[Gryff]

Having lost a SIL to MND really feel for you all take all the support you can get Ally chose not to be tube fed or ventilated a brave and the right choice for her and the family
Or thoughts are with you all

[Feebee2]

Just thought I'd post an update after all the kind messages which are appreciated.

I'm sitting in the lounge at the Bridge Hotel Buttermere, large glass of wine in hand. Tonight for the first time Hospice at Home have come to look after DH.
To say he wasn't happy about that is an understatement! However as I've tried to explain we are in this together but I need just a little break.

So DH is still with us which surprises me really as he deteriorated so rapidly before he was diagnosed with MND I didn't think he'd last the year out.
He has ventilation 10 hours per night with top ups during the day. His breathing is horrendous and he can't walk at all. He is losing use of his hands and his voice is weak. He survived pneumonia in January. So underneath I think he is pretty strong.

We continue to enjoy life and take each day as it comes. We have discovered Haven have very good accessible caravans. We have had at least 6 separate weeks away and loved those breaks.

Anyhow I'm sure there was something else I meant to say but there's a large glass of red wine calling me away...

[Gryff]

Every minute you have together is precious but to enjoy them you need to have time to be you
I won't say enjoynyour break but use it to relax recharge and face what each new day and the challenges it brings as you both need it

[Colette-S]

Originally Posted by Feebee2

Just thought I'd post an update after all the kind messages which are appreciated.

I'm sitting in the lounge at the Bridge Hotel Buttermere, large glass of wine in hand. Tonight for the first time Hospice at Home have come to look after DH.
To say he wasn't happy about that is an understatement! However as I've tried to explain we are in this together but I need just a little break.

So DH is still with us which surprises me really as he deteriorated so rapidly before he was diagnosed with MND I didn't think he'd last the year out.
He has ventilation 10 hours per night with top ups during the day. His breathing is horrendous and he can't walk at all. He is losing use of his hands and his voice is weak. He survived pneumonia in January. So underneath I think he is pretty strong.

We continue to enjoy life and take each day as it comes. We have discovered Haven have very good accessible caravans. We have had at least 6 separate weeks away and loved those breaks.

Anyhow I'm sure there was something else I meant to say but there's a large glass of red wine calling me away...

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You do need that break and should make the most of it. Hospice at home is a lifesaver, I’ve been using this service for 5 months now and I don’t know how I would have survived without them.
Hoping you fund the strength to get through this and you continue to get support xx

[Floridaagogo]

Thinking of you at such a difficult time xxx

[Mr Tom Morrow]

OP. Enjoy your wine you deserve it. Gryff has summed this up perfectly. You must have some me time during this difficult period.
Thinking of you and sending you best wishes

[Mazbar]

If he is struggling with mucus in his throat, that is common with mnd, and he can still swallow get him pineapple juice it helps to break it down. That is what my mum was advised.

[ClaireNJ]

Glad you’re having some rest on your own finally, thinking of you both X