|
Additional Support Needs & DAS Help & advice |
|
Thread Tools | Search this Thread | Display Modes |
18 Feb 20, 11:49 AM |
#11
|
|
Thread Starter
VIP Dibber
|
MR came back as decision upheld, so i need to go to next step. Consultant/oncologist going to do me a letter, will get one from school and SALT and one from paediatrician she is due to see next friday and psychologist. Fingers crossed
__________________
: |
|
|
18 Feb 20, 12:56 PM |
#12
|
|
Imagineer
Join Date: Apr 14
|
This makes me so angry, we don't apply for these things just for the hell of it, it's something needed to improve our child's lives, hopefully now you go to appeal it will be a success... We are waiting on the next lot of renewal forms for our daughter as her last award was only for 2 years... I get so anxious around this time and seeing others battling to get this for their child doesn't help... Lots of luck xx
|
|
|
18 Feb 20, 01:32 PM |
#13
|
|
Imagineer
Join Date: Aug 06
|
So sorry to hear this but not at all surprised sadly,we did the same with our younger son with asd, mandatory reconsideration upheld,sadly didnt have the strength to go for appeal,as also doing renewal for my older son with asd.
I really hope all goes well at appeal,I'm sure it will but doesnt help at the moment I know,its very stressful.It makes me so angry to hear they dont read the details you send in,the same happened with both my boys! ,they also said they didnt contact the consultant or cyps,no idea why! |
|
|
18 Feb 20, 02:08 PM |
#14
|
|
Imagineer
|
The reduction from higher to middle probably indicates she does not now need help at night Is this the case,because it doesn't matter if she needs lots of help during day if she doesn't need it at night if that makes sense?
__________________
|
|
|
18 Feb 20, 02:22 PM |
#15
|
|
Imagineer
|
I’m so sorry to hear that, although not really surprised sadly. Don’t let it dishearten you though, many appeals are successful. The MR basically feels as if it’s a waste of time as, it more often than not, upholds the decision. Then there’s an even longer process for appeal. It’s heartbreaking to see people with so much on their plate having to take on appealing the decision as it can be so time consuming and stressful.
I hope it goes well for your daughter xxx |
|
|
18 Feb 20, 07:37 PM |
#16
|
Apprentice Imagineer
|
I know how stressful it is for you, I have had to fill the forms n over the last 20 years, it is just not the stress of the form it is knowing you are going to have to fill it in, whether you have completed properly and then waiting for the decision , I am not a stupid person, but forms just floor me, and have always had to have help to do them (CAB/ social worker/brain injury clinic). I hope you are able to sort this soon xx
Edited at 07:39 PM. |
18 Feb 20, 07:48 PM |
#17
|
|
Thread Starter
VIP Dibber
|
Her night time care hasnt changed or if anthing has increased. They havent contacted consultant or school, so our consultant will do us a letter.
__________________
: |
|
|
18 Feb 20, 07:59 PM |
#18
|
|
Imagineer
|
Does it not explain in the letter what you have been awarded for or not awarded for?
__________________
|
|
|
2 Mar 20, 03:06 PM |
#19
|
|
Thread Starter
VIP Dibber
|
Am putting together my appeal to send off this week, i have read what i can about this. I am putting in for oral hearing so i can at least feel ive put my experiences accross. Her needs at night havent changed, i wish they had improved, but no. Am tired of all this though, only just got DS PIP done a few months ago!
__________________
: |
|
|
2 Mar 20, 03:33 PM |
#20
|
|
VIP Dibber
|
We lost it for our DS, we got a letter saying it was to go to interview stage. got 2 days notice. my mum had just died and my other son needs 24hr care so I phoned and explained it was too short notice, she said it would be dealt with. got a letter next week saying excuse was not valid enough. so my mum had just died and I had no care for ds1, how bad must it be to postpone
don't have the energy to carry it on to appeal
__________________
ali |
|
|
|
DIBB Savings |
AttractionTickets.com
Get £10 off each Disney Ticket with the code ATDIBB10 Get up to £50 off per room at Disney or Universal with the code DIBBHOTELS |
theDIBB Blog |
Guests can book their 2025 Hotel and Ticket package early to enjoy Free Dining &... Read More »
The iconic 1900 Park Fare restaurant is opening its doors once again at Disney’s Grand... Read More »
One of the the five worlds found in Epic Universe, How to Train Your Dragon... Read More »
|
theDIBB Menu |
Exchange Rates |
US Dollar Rates
Euro Rates |
DIBB Premium Membership |
Did you know you can help support theDIBB with Premium Membership? Check out this link for more information and benefits, such as... "No adverts on theDIBB Forums" Upgrade Now |