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Additional Support Needs & DAS Help & advice |
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5 Aug 19, 10:48 AM |
#11
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Thread Starter
Imagineer
Join Date: Aug 18
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I did ask for one and got it. It was more to do with me not being able to hold my bladder but I did have a issue with a flare up over there which wasn’t brilliant but keep going when in the most magical place on earth.
They had adverts on their tv channels for drug for helping endo so I think they are more aware than the uk are. Maybe we should have an endo group cos I seem to have come across lots of people the same on here. Mines controlled by the pill but for some reason I still seem to get the pains a lot. I’ve had them most days since coming home from Disney and i get fed up of feeling like 💩 I only ended up asking for it 4 times in three weeks. Used it three times as the ride went down. I used it on slinky and seven drawfs. No way would I have managed those lines. I think I managed a lot really not using it that much but it was more of peace of mind that I could if I needed to but tried very hard not to if I could. |
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5 Aug 19, 11:15 AM |
#12
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VIP Dibber
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That’s great that you got one.
I saw those adverts too. It’s a shame that you are still in pain, I used the pill for years to manage it until I had a crazy bleed and needed a blood transfusion. I have the mirena coil and the bleeding and pain are much more infrequent. You are right we should have an endo group. I ended up in hospital last week and have a suspected diaphragmatic hernia or some other issue with my liver. Waiting on an mri, I asked if it could be endo related but was told no, however, I’ve read loads of the last few days of instances of endometriosis causing this. So yet again just as I thought my endo battle was over it looks like it might have thrown something new my way to deal with. It truly is never ending! 😭
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Rescuers Reports Lots of food and trip reports |
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5 Aug 19, 01:10 PM |
#13
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Very Serious Dibber
Join Date: Oct 08
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