A new update on Mason

[daisymae]

Poor Mason he’s been through the mill. He’s a very brave boy. Hope the Prednisolone works for him. It must be quite a stressful time for you all. Take care x

[Floridatilly]

Thank you all 🥰
Yes, he is eating food now and loving it. We are keeping a food diary in case anything effects him but so far so good 👍🏻

[ClaireNJ]

Thanks for the update 💕Glad his feeding tube has been removed now & good luck for everything he has to go through in the future xxx

[belfastbabe]

Thanks for your update and it’s great to hear your positivity. We all hope this is a better year for Mason and all the family x

[JackyH]

Thanks for the update on Mason. He is a little star and thankfully has the best support from his family.

[DiscoDaisy]

Mason is part of the Dibb family - we expect and welcome updates 🙂 Glad to hear you have a plan going forward FT. Thinking of you both xx

[dismamx2]

Your brave little lad has been through a lot; and you too. Hopefully in a few weeks everything will settle and you can get this under control.

Thanks for the update

[captain-codeye]

Sorry to hear it didn’t work as well as it should, as I said previously it’s a long journey to remission😫

You will notice a huge difference within 48 hours when the prednisone kick in, they are amazing and he will pick up fast, watch for the lack of sleep and try to stop him sleeping in the day if he’s been up all night.

It’s good you got the vit d as they strip it out of you.

It’s a shame that it can’t be used long term, it’s an amazing drug but evil at the same time, It helped me but I came reliant on it too many times.

I imagine if it doest work they will be looking at hydrocortisone next which is the iv equivalent, again it worked wonders for me.

He’s doing well to be coping with all of this and it’s a huge testament to you, remember that every crap day is a day closer to finding the way forward for him.

[2point]

A brave young lad, the improvements and continued support from the consultants are a positive.

[Bootrip2]

Am pleased Mason is doing well and eating again, it mustve been really tough for him, especially over christmas. Hopefully he will do well on the new drug combo. X hopefully he will soon feel much better. X