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Old 16 Jan 21, 10:21 AM  
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Midges17
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Anyone suffer with dupuytrens contracture

Morning,

Anyone have this condition? I have previously had 2 operations, the second more successful than the first,(on the same fingers/hand) I don’t have any of the common “risk factors” of having this disease but it’s now getting worse again, obviously it’s not an emergency so won’t be going to the doctors just now but wondered if anyone has any experience of this & whether multiple operations actually work, google searches are very mixed about success rates!

Thank you
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Old 16 Jan 21, 10:41 AM  
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Bootrip2
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I thin you can get onjections now to release the contracture, they are spaced out and manipulated to make things better, but you would need a gp referral to orthopaedics or hand surgeon
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Old 16 Jan 21, 10:42 AM  
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Bootrip2
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Called Collagenese injections . 😁
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Old 16 Jan 21, 10:44 AM  
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Midges17
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Originally Posted by Bootrip2 View Post
I thin you can get onjections now to release the contracture, they are spaced out and manipulated to make things better, but you would need a gp referral to orthopaedics or hand surgeon
Thank you will go google these, no one has mentioned them to me before.
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Old 16 Jan 21, 11:14 AM  
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Scotsmomma2
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My husband has this, apart from when he was first diagnosed years ago, he's never had anything done about it, it has got a lot worse though but at nearly 70 he said he'll just put up with it now. 😳 He reckons as long as he can lift a suitcase then he'll be fine. I know it can run in families, his Auntie had it too.
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Old 16 Jan 21, 11:26 AM  
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chrisxal
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I have it in both hands although no contracture yet but very painful nodules in both hands, I had been seeing a hand specialist but obviously only had telephone consultations for nearly a year now, I also have Ledderhose disease which is almost the same but in my feet, so both hands and both feet, I use CBD oil orally and hemp gel that I massage in, it is so painful it wakes me up in the night, I take far too many painkillers.
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Old 16 Jan 21, 01:38 PM  
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Midges17
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Originally Posted by chrisxal View Post
I have it in both hands although no contracture yet but very painful nodules in both hands, I had been seeing a hand specialist but obviously only had telephone consultations for nearly a year now, I also have Ledderhose disease which is almost the same but in my feet, so both hands and both feet, I use CBD oil orally and hemp gel that I massage in, it is so painful it wakes me up in the night, I take far too many painkillers.
That’s sound awful can I ask what CBD oil is? I have a new nodule between my pinkie & next finger my 2 operations have been on my pinkie & palm
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Old 16 Jan 21, 01:40 PM  
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Midges17
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Originally Posted by Scotsmomma2 View Post
My husband has this, apart from when he was first diagnosed years ago, he's never had anything done about it, it has got a lot worse though but at nearly 70 he said he'll just put up with it now. 😳 He reckons as long as he can lift a suitcase then he'll be fine. I know it can run in families, his Auntie had it too.
Has his spread across his hand? No one else in my family has ever had it, I was late 30’s when it was diagnosed which I was told was young to have it & that it’s more common in men!
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Old 16 Jan 21, 02:16 PM  
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Scotsmomma2
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I've just taken a photo of both his hands, I've never really looked at them for a while and I was 😳 He says it doesn't really bother him that much and he won't be going for an op. I think it's probably 20 years since he was diagnosed.
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Old 16 Jan 21, 03:23 PM  
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Loopylooloo
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My husband had this, it is apparently a scandanavian disease, he had an operation on his hand many years ago and while his hand is quite scarred but it has given him great freedom of movement in it ever since.
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