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Old 26 Jan 19, 11:43 AM  
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#31
cheekydeeky
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Oh my goodness, I can’t begin to imagine what you are going through. Words just aren’t enough at times...

You son sounds like a remarkable, inspirational young man.

Sending lots of loving thoughts to you all, along with the baby girls family and the donors family. I don’t know if they are kept updated but I imagine if they are they will be on a similar rollercoaster of emotions .
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Old 26 Jan 19, 11:46 AM  
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#32
alkel2730
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I’m a so so sorry to read your update. I remember your original post too. My heart goes out to your son and you and the baby girl, life so so very unfair sometimes. Your son is amazing, and I agree with everyone else, things like this make me let go of the irritations in life and live for now. Sending lots of hugs and I hope your son stays cancer-free. xxx
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Old 26 Jan 19, 11:51 AM  
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#33
Vinniecat
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Sending lots of love. You have a very mature son to be proud of. Of course you made the right decision.
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Old 26 Jan 19, 11:53 AM  
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#34
billbarbara229
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Prayers for strength for you all
My uncle died yesterday in a care home aged 88 and has had mental issues all his life its seems so unfair for this poor child and your son I really hope you get a positive outcome can he not have another transplant
Love to you all
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Old 26 Jan 19, 12:02 PM  
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#35
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I have no words to say that can do anything to relieve this situation. Just thoughts and prayers
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Old 26 Jan 19, 12:11 PM  
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#36
danisleigh
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Originally Posted by billbarbara229 View Post
Prayers for strength for you all
My uncle died yesterday in a care home aged 88 and has had mental issues all his life its seems so unfair for this poor child and your son I really hope you get a positive outcome can he not have another transplant
Love to you all
We have an appointment with his consultant and will ask the question about retransplantation then but at the minute DS is adamant he doesn’t want to do that as a precaution. I would like to ask the question though and have all the facts.
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Old 26 Jan 19, 12:15 PM  
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#37
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Such a rollercoaster for you all..your son has a great attitude to it all and I hope he continues to live life to the full,you as a Mum must be so proud of him and yet worried at the same time. I hope he stays well and has a wonderful life ahead of him x
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Old 26 Jan 19, 12:27 PM  
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#38
Mary A
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Again, no words for the situation you find yourselves in but your son is an amazing young man and is obviously from a loving and supportive family. ❤
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Old 26 Jan 19, 12:30 PM  
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#39
Lisa123wm
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I can see why you have such mixed emotions, what a lot you’ve all been through in the last year.
I remember your post last year, and was so happy for your son and for the baby, so I’m sorry to hear this update.
But, your son is amazing. What a great attitude he has to life, so positive!
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Old 26 Jan 19, 12:31 PM  
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So sorry to read the update it must have been an awful shock for you. I hope your son continues to remain positive and live his life to the full.
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