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26 Jan 19, 11:43 AM |
#31
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VIP Dibber
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Oh my goodness, I can’t begin to imagine what you are going through. Words just aren’t enough at times...
You son sounds like a remarkable, inspirational young man. Sending lots of loving thoughts to you all, along with the baby girls family and the donors family. I don’t know if they are kept updated but I imagine if they are they will be on a similar rollercoaster of emotions . |
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26 Jan 19, 11:46 AM |
#32
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Imagineer
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I’m a so so sorry to read your update. I remember your original post too. My heart goes out to your son and you and the baby girl, life so so very unfair sometimes. Your son is amazing, and I agree with everyone else, things like this make me let go of the irritations in life and live for now. Sending lots of hugs and I hope your son stays cancer-free. xxx
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1st trip: 1985 - Travel Inn. 13 further trips as a child. 2003 & 2007 - June and May Homewood Suite I drive. 2009 - Sept Animal Kingdom Lodge - 2011 - May/June Disneymoon trip! BWV & AKL. 2012 - Sept The 'anniversary trip' SSR. - 2013 - October the bonus trip to POR 2015 - 20th trip!September WLV first trip with DD! 2017 - Sept Poly first trip with two toddlers! 2018 - May AKV & POR the last before school trip. 2019 - May SSR & Kidani 2022 - April Poly, SSR, WLV 2023 - POFQ & AKL |
26 Jan 19, 11:51 AM |
#33
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Imagineer
Join Date: Jul 16
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Sending lots of love. You have a very mature son to be proud of. Of course you made the right decision.
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26 Jan 19, 11:53 AM |
#34
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Imagineer
Join Date: Aug 07
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Prayers for strength for you all
My uncle died yesterday in a care home aged 88 and has had mental issues all his life its seems so unfair for this poor child and your son I really hope you get a positive outcome can he not have another transplant Love to you all |
26 Jan 19, 12:02 PM |
#35
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Imagineer
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I have no words to say that can do anything to relieve this situation. Just thoughts and prayers
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26 Jan 19, 12:11 PM |
#36
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Thread Starter
Imagineer
Join Date: Jul 12
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We have an appointment with his consultant and will ask the question about retransplantation then but at the minute DS is adamant he doesn’t want to do that as a precaution. I would like to ask the question though and have all the facts.
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Apr 98..Quality Inn, Dec 2004...hotel Cheyenne, may 2006...Emerald Island, Mar 2013..Regal Palms / AKL / Rosen Inn / HRH, Oct 14..Cypress Pointe, July 2016 Newport bay club, Aug 2016 magic med cruise, Aug 2017 SSR/Rosen pointe/HRH, Aug 19 Northern Europe Disney magic, Dec 2019...Sequoia Lodge, Xmas 2021 Rosen Plaza/HRH, May 2022 POFQ/HRH, May 2023 Disneyland LA. |
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26 Jan 19, 12:15 PM |
#37
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Guest
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Such a rollercoaster for you all..your son has a great attitude to it all and I hope he continues to live life to the full,you as a Mum must be so proud of him and yet worried at the same time. I hope he stays well and has a wonderful life ahead of him x
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26 Jan 19, 12:27 PM |
#38
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Imagineer
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Again, no words for the situation you find yourselves in but your son is an amazing young man and is obviously from a loving and supportive family. ❤
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First visit 1989, last visit March 19. Next holiday Washington, Key West & Orlando May 20. Planning Hawaii for March 21 |
26 Jan 19, 12:30 PM |
#39
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Imagineer
Join Date: Jan 08
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I can see why you have such mixed emotions, what a lot you’ve all been through in the last year.
I remember your post last year, and was so happy for your son and for the baby, so I’m sorry to hear this update. But, your son is amazing. What a great attitude he has to life, so positive!
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Sept 93 - Orlando, California, Nevada Aug 94, Jul & Dec 03, Oct 04, Xmas 05, 06, 07 - DLP Dec 08/Jan 09 - Residence Inn Seaworld, Orlando Aug/Sept 09, Jan/Feb 10 - DLP, Aug 13 - NPBC DLP |
26 Jan 19, 12:31 PM |
#40
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Imagineer
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So sorry to read the update it must have been an awful shock for you. I hope your son continues to remain positive and live his life to the full.
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