Prescription Issue

[IBEX23]

Originally Posted by TheHughesCrew

As per my other reply... your GP may well prescribe in the future, but only after communication from the clinic, even if they haven't seen you.

As an example, my son was prescribed drugs from a specialist clinic. They gave us 4 weeks worth, but it was then the GP's responsibility to prescribe it going forwards. At no point did we see the GP for that condition.

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That’s understandable. But I’m sure at some point your GP would’ve had some instruction or communication to prescribe?

[TheHughesCrew]

Originally Posted by scouse_minx

That’s understandable. But I’m sure at some point your GP would’ve had some instruction or communication to prescribe?

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Oh yes, there must be communication.

You were obviously right about the issue today, but I just wanted to warn you it might be GP in future x

[IBEX23]

Originally Posted by TheHughesCrew

Oh yes, there must be communication.

You were obviously right about the issue today, but I just wanted to warn you it might be GP in future x

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Thank you, I’m sure it probably will be if it carries on. I’ve got a 6 week course so I’m hopeful that might be the end of it

[Feebee2]

I've had uvititis three times in the past 2 years it is very painful! Did they give you some drops to dilate your pupils? This eases the pain a lot.

[IBEX23]

Originally Posted by Feebee2

I've had uvititis three times in the past 2 years it is very painful! Did they give you some drops to dilate your pupils? This eases the pain a lot.

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They did but advised to only use them for the first few days which I did. I’m using them sparingly now as I can’t see at all with them in. This is my 2nd episode since September

It really is miserable so you have my full sympathy.

[Abbey36]

I feel for you, I’ve lived with it on & off for 25 years. Get flare ups but no regularity or pattern, think the longest I went without it was about 18 months. I always have eye drops with me & self medicate at the first sign which really helps it not get too bad, then Im seen at the hospital to establish the severity & confirm treatment plan. Not sure where your based but after years of being under hospital care I recently received diagnosis, prescription & after care via my optician which was so much easier & more pleasant than sitting in hospital clinics or wards for hours! There are around 8 opticians in my health board area (Wales) who have undergone the required training to be able to now offer this, introduced as a result of COVID to assist the nhs. May be worth asking opticians in your area if they do this for any future flare ups.

[IBEX23]

Originally Posted by Abbey36

I feel for you, I’ve lived with it on & off for 25 years. Get flare ups but no regularity or pattern, think the longest I went without it was about 18 months. I always have eye drops with me & self medicate at the first sign which really helps it not get too bad, then Im seen at the hospital to establish the severity & confirm treatment plan. Not sure where your based but after years of being under hospital care I recently received diagnosis, prescription & after care via my optician which was so much easier & more pleasant than sitting in hospital clinics or wards for hours! There are around 8 opticians in my health board area (Wales) who have undergone the required training to be able to now offer this, introduced as a result of COVID to assist the nhs. May be worth asking opticians in your area if they do this for any future flare ups.

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This sounds so much better. I am miles away from the hospital clinic I have to attend and it is hard to get there at times. Would be so much easier if a local optician could do the same thing.

Mine is triggered by my Vasculitis they believe so they’re sure it will end up being recurrent. I’m off to the clinic now and my sunglasses are a life saver as I’m so light sensitive and it is so painful. Do you have any tips on the headaches? The eye pain and blurred vision seems to be triggering terrible headaches that won’t shift

[Abbey36]

The only thing that helps the headaches for me are the drops that dilate your eye so it rests, I know it’s blurry but they do work. I would also say that every time I’ve had it it has got a bit less painful - a few exceptions but the very first time I was in hospital for 5 days whilst they tried to get it under control. There’s been no reason found for mine I’m just unlucky. I find stress usually triggers it. Interesting too I have it in either eye but only once in both eyes at the same time! Hopefully you will recognise the signs earlier if & when you get it again & can start treatment asap as that’s been the key for me. The first time though I remember the pain not only in & around the eye & head but radiated down my jaw. Hope you’re feeling much better soon.

[justacey]

I'm also a member of the uveitis club.
I've had it recurring for nearly 40 years. The last time I had it 'proper' every time I was weaned off the steroids it would come back, so I'm now permanently on one drop a day of a lower strength eye drop (FML Liquifilm).
It was always in my left eye, but last December I got it in the right eye for the first time.
When I get a niggle in my eye, I go straight to Specsavers and get referred to eye hospital. That means I get treatment early doors. I do hate the palaver of getting to Royal Gwent. I am very thankful for free prescriptions in Wales, though.

In my case, I get a prescription for the whole 6-8 weeks of treatment from the eye hospital and then they send a letter to my GP, so I get my monthly drops via my pharmacist ordering them from my GP.

Because my treatment first time took ages via the doctor not knowing what I had, my pupil got stuck and so it's been distorted and I now have a cataract slowly forming due to extended steroid use.

[IBEX23]

Originally Posted by Abbey36

The only thing that helps the headaches for me are the drops that dilate your eye so it rests, I know it’s blurry but they do work. I would also say that every time I’ve had it it has got a bit less painful - a few exceptions but the very first time I was in hospital for 5 days whilst they tried to get it under control. There’s been no reason found for mine I’m just unlucky. I find stress usually triggers it. Interesting too I have it in either eye but only once in both eyes at the same time! Hopefully you will recognise the signs earlier if & when you get it again & can start treatment asap as that’s been the key for me. The first time though I remember the pain not only in & around the eye & head but radiated down my jaw. Hope you’re feeling much better soon.

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Oh that sounds like such a terrible time, I’m so sorry it was so bad. This is the second time I have had it, and it’s been bilateral both times. This episode seems to be taking longer to get under control in terms of pain, light sensitivity and blurred vision. The headache is all behind my eyes and across my forehead.

I’m off work right now as I work on a computer all day and just couldn’t do hours in front of it right now. Hopefully I’ll get to recognise the signs quicker in future so it can be under control quicker.